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Thank for the prayers and here is the update.

Started by jangytexan, September 07, 2008, 04:10:04 AM

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jangytexan

Let me tell you I am so upset.  I went for the e-val...they do not have motorized e-val on Fridays...they are closed. I went to get my regular wheelchair and they were out of the 20" beefy...(that was what I called it not them... I have to call on Monday to see 'if' they will deliver one here.  I went for the guy that told me I had a e-val he said you sure do for shoes...that is right you heard me shoes...noooooooooooo wheels.  They measured me for shoes.  I went and got my blood drawn...I went to see my PC in TEARS...She was wonderful as always and put in for a REAL e-val for a motorized wheelchair and put URGENT on it...so when that date will come I have no clue.  My feet were nice and blue and bruised and swollen....I wore my crocs sandals the only ones that fit.  She re ordered my pain pills.                                                                                                                                                                                                                                                                                                 

She wants me to see neurosurgery about my back.  The MRI was marked UNSTABLE.  She said that is NOT good.  She really was sympathetic about my pain, but offered me no better solutions than what I am on and the ... stay off your feet they are deteriorating... Oh, I have no feeling in my left leg...she just does not know how I make it around.  I told her I don't...I was crying so hard by then and blubbered that I had taken my own self off prednisone and the pacquinel...she wanted to know whatever for...I said every time I am at the Rheumy or in the Hospital they blamed everything from my FAT to my bone loss to my Heart problem on the steroids so I stopped taking them and I cancelled the Rheumy appt.  they do me no good.  She said you have RA you have to see someone I said I want to change Doctors. There is a Dr.NG she said that is good so I plan to change to him.  She wanted to know why Dr. Troll had not put me on Humera???? I said No he never told me about it...that seemed to tick her off.  She is going to review my blood test to see if I have a 3 month 7 and if so she will put me on meds for diabetes...
I left.

Russ did get his tooth pulled and so that is behind us and because he did we got gas money.

I am exhausted....and very very sad.  I just knew with all the prayers I got all would be on the way to feeling better....I weigh more than I have ever weighed in my life EVER. 

I am sadder than a three legged chicken at a barn dance with no fiddle player....

NEXT DAY SATURDAY
Guess Where we were all morning long?  On the Water and it was so beautiful...We caught Red fish(me) he was too small...The speckled trout we caught were too small too but they sure put up a fight.  Russ caught a 24 inch Gafftop ( a very slimy salt water catfish...)  We both caught plenty of sand trout for Supper...  There was a Bi Plane doing stunts and would buzz the boat it was way cool....Russ threw out his shoulder but said it was worth it...I got too much sun and was on my feet too much walking that 24 foot monster back and forth for bait..LOL 

I feel like a million dollars...do I hurt OH YES...I plan to take a cool shower and head for bed then up and cook those fish! 

Supper huggles to you all...

NOW

Up all night ... copied this from my journal and goin to take another codein and try to go back to bed...just that ol bed is a enemy I wish we could afford a new one...but that is waaay out of our budjet

The greatest thing about this site is all of you.  I just can't sit at the computer very long and you make it like I never left and love me anyway...Wow you are great!!

pudmott

Oh Jangy,
Im so sorry you didnt get your wheels. And your rheumy. Hook him up the butt and throw him in as bait for a shark. Although if the shark had any sense he would swim a mile. Probably bitter and twisted anyway. Hopefully your new date will come along soon and you will have those wheels. I will continue to send out positive thoughts and add you in my prayers.

Its good you got out fishing and had a bit of down time. You there is such thing as good pain and i think the hurt you had after fishing is good pain. reminds you that you are alive and there is life to be had. I bet those fish were nice. I find nothing more relaxing that sitting on the water on a boat throwing a line in. I get lost in it. that is until a fish gets on. Therein lies a problem as im totally freaked out by fish. They scare the heck outta me. Its quite hilarious really once when i was a kid i was fishing having a great time until a fish got on. i kept walking backwards to get away from the fish and nearly fell off the other side of the pier.

Anyway glad you had a good day. Keep your spirits up. you are in my thoughts

Pud

Pooh

Jangy,
Don't worry about that weight, there's just more of you to love. ;D

Pooh

Scottietottie

Hi Jangy

New doc sounds like a good move. So sorry about your wheels. I hope the re-evaluation comes along real soon! 

Hope the fish were yummy!

Take care - Scottie  :)
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Never do tomorrow what you can put off till the day after tomorrow!

lynnmarie219

(((((((((((jangy)))))))))

Sending you lots of gentle hugs and positive thoughts!! I hope the next evaluation is soon and brings you those motorized wheels that you  need.

Good luck with the new rheumy as well...I think that is an excellent move!!!

Patze

Jangy my friend, I'm so sorry to hear about the wheel chair mess up, I'll keep the old digits crossed that they'll order you the best of the wheel chair lot!  And please don't let them off the hook too easy, the squeaky wheel, lot's of extra heavy duty grease, and all the rest of that.

Jangy, never worry about the extra fluff, I've been fighting it for several years now and it's not gotten any better.  By the way, I would much prefer to know a person's soul than the shell that holds it.  And Pooh's right, there's just more of you to love! ;D

Oh, I'm glad that Russ is also feeling a bit better; hey, any little thing is a whole lot better than a whole lot of nothing!  Give him my best will you?

Fishing!  Wow, I'm so glad that you had a fun day on the lake!  That sounds like such a wonderful day, lucky you's!

Please take care and keep us updated, okay?

Patze
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Sero Negative Queen

genko_b

Hi Jangy - Good to hear from you again, but I'm sorry about not getting the wheelchair yet. I say "yet" because I am sure you will get one soon, just keep working at it.

A three-legged chicken at a barn dance with no fiddler? Where do you come up with these?

Genko

mim


qtpie1135

Oh, sweetie, I am so sorry to hear that you did not get your new wheels! I do think that the new doctor is a great idea! When you are losing change your style!

And I agree with everyne else, there is more of you to love!  :D

I am sending lots of love, prayers, and well wishes your way!!!!

{{{{{{{{{HUGS}}}}}}}}}

Sylvia