Good Grief! New diagnoses

[kathylee]

In the last 17 days I have been diagnosed with a fast growing cataract that needs immediate surgery, probable neuropathy, and yesterday a leg blood clot with inflamation and a fever. I WANT A TIME OUT PLEASE!!!!!!!!!!!!!!!!!!!!!!!!

Do blood clots have anything to do with Sjogrens or autoimmune stuff? I'm only 57 and I'm feeling like I'm falling apart this week............
Kathylee

[Pooh]

Aww Kathylee, I hope things settle down for you real soon.  Please be careful and do what the doctor tells you with the leg.  Those things are not to be fooled around with. 

Take care and rest if you can,

Hugs, Pooh

[Skylar]

Oh boy, you do need a time out. (((HUGS)))

Skylar

[SHERI]

I am sorry that you are having such a rough time. I do understand how over whelming it can be. Like the old saying when it rains it pours. We will all be thinking of you.

[Cheryl]

Kathylee,
   Bless your heart!   It sounds as if all your parts are ganging up on you at once.   Hang in there, and feel better.
Cheryl

[Patze]

Hi Kathylee,

Boy, your body is giving you a work out for sure!  Dang.  Have you been checked for Antiphospholipid Antibody yet?  It can be often be found with AI's and can cause blood clots.  I have FVL, I still have to be careful on what I eat and drink; it's not fun.  

I've not had a blood clot yet, but I've watched several family members deal with theirs and I don't wish that on any one.  Have you seen a hemo yet?  What drug is your doctor putting you on?

Please take care and keep us updated, okay?

( ( ( ( ( BIG GENTLE H U G S ) ) ) ) )
Patze

[Scottietottie]

Hi Kathylee 

The trouble with SjS is that it doesn't stop us getting other troubles too - and they're not necessarily related. I hope you get sorted out soon. You're having a bad run.

Take care - Scottie 

[lynnmarie219]

I'm so sorry that you are having so much to deal with all at once. Please be careful, listen to your doctor,  rest, and let us know how you are doing when you are able! I don't know if your blood clot has anything to do with Sjogrens or not, but sometimes we tend to assume its sjogrens related and it can be something else entirely unrelated.

Take care.....

[kathylee]

On way home from work last nite that leg started to feel wierd. By the time I got home it had an ache thru it. I had a 7PM appoinment with my therapist (haven't seen her for a month now!) so I canceled to keep off my feet. It went away by end of evening.
What I've been told to do is take nsaids and use warm compresses. I pressed that I take hydrocodone ( with tylenol in it) for my pain and shouldn't take both. Right? He went into questioning my pain rather than answering the question....idiot. Called my family doc today and he said it was OK to take both at the same time. Any new meds scare me especially when I'm burned out cause one of the most common reactions I get is disrupted sleep and hperactivity.
Patze what is this Antiphospho thing? No I haven't seen a hemo I' did in 2003 (blood doctor right?). And what do you mean by watching what you eat and drink?
Thank you everyone for you kind thoughts and words.........it made today easier.
Kathylee

[Patze]

Hi Kathy,

Has your doctor referred you to a hematologist yet?

I'm sure others here can explain it better, but here goes; aPL/APS is another AI that can cause blood clots and can be found with genetic blood disorders (like I have)/other AI's.  Now, I've been told that I have to be careful to make sure that I limit how much vitamin K I consume as it can increase the risk of a clot as does drinking alcohol.  Darn, FVL takes all the fun out of things!

Anyway, here are a couple of websites that you might want to peruse for information. 

http://www.medic8.com/genetics/antiphospholipid-syndrome.htm
http://phospholipidplanet.com/index.html

Hang in there and please keep us updated -

Patze

[kathylee]

Good news,
My eye doc said he could give me new lenses that would get me by for 3-4 months. When he explained to me the eye drop demands after the surgery I said now I was very sure I needed extra time to get back from the much worse place I'm in due to having this crisis that is tenatively defined as myasthenia gravis. No way can I get my arms up to do drops every day like that now. I am grateful for the reprieve so I can focus on this whole mess of new docs and getting diagnosed with this muscle problem.

Kathylee

[Sandra]

Stop this ride we all want off!  Too bad it isn't that easy, seems like it's a kind of rains it pours kind of ilness. For me what's funny and annoying is that if I need to see my GP I can only talk about 1 thing per apopointment  ...I haven't just had one thing at a time since.....I can't remember when! I usually tell the receptionist here's my list pick one, and then make me five more appointments! Sandra