A few more questions

[navydad]

For months,, my leg musles have been getting weaker by the day, they actually hurt all te time,, like being cramped p,, and now its gotten to the point where if I sit in front of teh aiir conditioning vent in the house,, I cant feel the cold air,, got a strange rash on m lower legs and feet,,, SS  related? ,, other question,, with the dry mouth thing,,, sometimes during the day i;ll make saliva,, not a lot, then all of a suddenn mymouth willl go completely dry,, im taking bone dry,, just wondering if anyone ever had this problem,, its geting harder and harder to sleep,, walk up and down stairs,, and to even think straight,, looks like a nother day of suffering,,

[Pooh]

Hi NavyDad,
Sorry to hear you having such a rough go of it.  My best advice right now would be to make an appointment with your rheumy and go in to discuss these latest problems. It could a neuropathy or something totally unconnected to Sjs. 

It's possible it could be Sjs, but it's also possible something else is working on you.  Please let us know what he/she finds.

Pooh

[Scottietottie]

Hi Navydad

I agree with Pooh. My muscles egt fatigued really easily but they're not exactly getting weaker the way you say your are. I think you need them checked out by a specialist and also to find out whet the rash is.

Take care - Scottie 

[eyeamdry]

Navydad, I have the problem of weaker leg muscles.  I've had it now for several years and before my SS diagnosis.  Now, I know what it is........at least part of SS.  I try to exercise my legs somewhat to keep the muscles from atrophy.  I get out of a car after a ride of 10 or 15 minutes and I have to stand up and stay put for a few minutes (2-3) to have my legs "catch up" and get strength for me to navigate decently.  My hubby hasn't caught on to this yet, no matter how often I tell him.

I have actually started off before I should have and been in a fix with nothing to grab on to.  I'm starting Lyrica to see if this is of some help for my all-over symotoms.  Lucy