Red palms and soles of feet

[Degbi]

Hi everyone,

I am new to SJS and was dxd with MS in  1999.  I saw my neurologist yesterday for my 6 month visit and he again suggested that I may have SJS and not MS.  I have an apt with a rheumy next month.  I had a lip biopsy and the ENT didn't get what was needed for a difinitive dx so I am left with a numb lip and inconclusive results.  This is just a little background in case it helps.

Anyway while I was talking to my neuro I mentioned my hands and feet.  My hands ache and are stiff.  Today my arm between the elbow and hand also hurts.  I showed him how my palms are extremely red and when I clinch them, they turn white and splotchy.  My feet do the same thing.  Both of these symptoms come and go.  I have reached the point that I don't feel like I have the dexterity to do my own weekly injection of Avonex (for MS) and want my husband trained so he can take it over.  When I mentioned this to my neuro, he said that I should tell the rheumy when I see her and nothing else.  I assume that this is not typical of MS but is to SJS.  Does anyone have this or know anything else about this?

I have other body aches, none of which are constant.  It changes sometimes minute to minute but always day to day.  I'll save these for another day.

Thanks,

Debi

[Pooh]

Hi Debi,
I do hope you find that you don't have MS, however, I wish it wasn't SJS they think you might have. 

The redness on your hands and feet sounds painful, but I'm afraid I don't know what to tell about it.  Perhaps one of members will have an answer. 

Please let us know when you see the rheumy and what the outcome is. 

Hugs, Pooh

[Scottietottie]

Hi Debi 

Welcome to Sjogren's world. 

I too, hope you don't have MS. I know that MS and SjS do sometimes get confused. It has happened to others.

I'm afraid I also don't know what to say about the red hands and feet. I assume you've had fairly extensive bloodtests and liver function tests and stuff? I'm glad the wait to see your rheumy isn't TOO long and I hope they're helpful. I think that the time waiting around for initial appontments and test results can really get a person down. If you need to vent - vent in here - that's fine!

Take care - Scottie