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I got it! Hot diggity dog, I got it!

Started by nussy, July 09, 2008, 04:44:01 PM

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Katybarstool

Nussy

Well done with the diagnosis. It does help to have a name for your condition. Now you are a full fledged Sjoggie  ;D

Kathyx

eyeamdry

QuoteI was thinking about LASIK for my eyes before this SjS thing, but my past experience with doctors squelched that in a hurry!

Nuss, you can thank your lucky stars you didn't follow through, especially with this "SJS" thing.  I had Lasik 9 years ago, long before I knew anything about SS and have been in eye pain every since.  I am getting disability because of the condition of my eyes.  Think of a lasik surgeon as a snake for anyone with autoimmune problems.  Lucy

Starlore

Welcome aboard! Just as everyone else, I truly understand your elation. Its a very 'odd' sense of a victory but as everyone has already stated, it makes such a difference to -know- the name of what's "bothering" you.

Years of OTC meds for an increasing list of symptoms: $$

Copay upon copay for endless appointments yielding only  "I don't know" answers: $$$

Being looked at by your boss as "full of it" when you call out sick, seemingly randomly: $$$ lost+All of your "vacation" time wasted :(

Getting an actual diagnosis that proves you're NOT a hypochondriac, to all those dissmissive doctors: PRICELESS ;D

nussy

Thanks, Kathyx for the welcome & my new handle....been waiting a long time for that!  :D

Lucy, I'm so sorry to hear about your eyes, what a tragedy.  Who would have known?  I just picked-up the dry eyes last December & thought the dry mouth was nothing.  If I had had the LASIK a month before, I'd be in your shoes, Lucy.  Sends chills down my spine.  My heart goes out to you.

And Starlore, you have succeeded in encapsulating the horrors, disappointments, expense, stress, expense (did I mention expense and stress? LOL) of not being diagnosed.  You are absolutely correct, getting a DX is priceless!.

Thanks so much, I will reread your post often, as I will all of you other kind and wonderful peoples' posts.  :)

-nuss-