Brain Lesion and cognitive impairment

[BonusMom]

I had a similar experience in 2010. I had stroke like symptoms. I had a full neuro workup in the hospital. They discovered a meningioma. I was referred to UCSF. Doctor said it was basically an incidental finding.

Fast forward to 2017 and I had some major cognitive issues. I requested a neuro psych exam, if, for nothing else, than a baseline. Something was definitely off.

The next year, I discovered what I had previously believed to be a new mole was actually a tick embedded in my abdomen. Instinctively, I knew that was the cause of the cognitive issues. I requested Lyme testing. It was positive.

Three weeks of antibiotics and they sent me on my way. When I complained of continuing symptoms, they said it could be from Lupus or Sjogren's and treatment was basically the same, which I find laughable.

I wish you well and hope this is an "incidental finding" for you, too.

[Carebear]

I had my neurologist appointment yesterday.  I don't really know how to explain it.  If swearing were tolerated on this forum, I would be using some choice words.

The appointment was conversational, so I felt quite comfortable right away. This was the only positive.

He was against "fancy tests" like MRIs or neuropsych testing because "then what?" he kept saying.  I brought up small fiber neuropathy and he was VERY against doing the biopsies because they were "criminal and cruel" and "then what? Nothing can be done."  So he was saying that SFN cannot be treated.

A common statement of his was (four times he said this) "The only way we will know what is wrong with you is by doing an autopsy after you are dead."  He also said "When you go to a funeral everyone says look how nice he looks.  But he is still dead."  Humm...

He just couldn't think of anything to do for my cognitive issues, only recommending an Alzheimer's disease medication (making it clear I did not have Alzheimer's - duh!).  He also said I could try ADHD meds but that would affect my sleep.  He appeared to know nothing about Sjogren's and did not ask any questions.  Why would he, when he knows it all already?

He hadn't looked at my second MRI.  Just another fancy test, I guess.  And he was going to write a letter to my doctor saying I was "sort of okay".

I think he was leaning toward ADHD before I even met him.  Just a feeling.  Not ADHD I assured him.

To summarize:  Nothing wrong with first MRI, he believed me about my symptoms but cannot prove it (wouldn't neuropsych testing do that?) and not recommending any tests because what's the point because we can't treat anything.

I will tell my family doctor everything and let her decide what to do now.  I'm still speechless.  What the heck.  No wonder I avoid doctors.