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Back after 5 years

Started by sunflower, December 30, 2021, 09:15:08 PM

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sunflower

Hello friends,

I'm thankful to see this forum is still going, although I suppose we wish we didn't need to be here.

As in my subject, I was doing reasonably well for about 5 years.  One xylimelt was sufficient at night, arthritis fairly stable, growing peripheral neuropathy.  One development was Meniere's Disease 3 years ago and I am wondering whether anyone else has it.  It is not serious although I have had to get hearing aids and my balance has deteriorated.  At age 77, I think I am too tippy!

I have three questions.

In the past 6 months (actually since getting my second Pfizer), I have noticed a downturn.  No longer is one xylimelt sufficient, my arthritis has ramped up as has the fatigue, and my eyes are so dry I can't keep up with drops even though I have punctal plugs and use Systane one-use drops.  Is there anything better on the market?

I am so disappointed.  I developed atrial fibrillation three years ago and that has been debilitating for me since I get so short of breath.  I had an ablation and was fine until I got the vaccines.  Now I am back to square one - even worse.  Does anyone else have reactions to the vaccines?

My final question:  I am curious as to whether those on plaquenil believe that has helped them avoid the virus or recover.  There has been a lot of controversy, but I have heard that it is effective.  These days there is strange mix of politics and medicine.

Best wishes to you all.  I am relieved to have the many ups and downs of the past year behind us and I believe we have a lot of reason for hope in 2022!

Sunflower
Sjogren's - eyes dx Feb/06, variety of new symptoms 2015, seroneg, lip bx 6/16 neg; early AMD; chronic lymphocytic leukemia dx 2006; kidney disease stage 3; breast ca - surgeries, radiation 2014; Meniere's Disease
Rx:  coversyl+, Eliquis; supps: Vitalux, Omega 3, calciuim

Fanciefrancie

I am so sorry to hear this.  Unfortunately, I have heard many who have had similar reactions to the vaccines. 

I hope you get some answers and feel better.
Mother of 3, Lupus, Secondary Sjogren's, dx 2015, Plaquenil, Celexa, Vyvanse, Vit D, Wine

Positive SS-A ( > 8 ) and ANA (>1:640)