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New York Times Sjogren's Article

Started by Judie P, September 12, 2019, 01:37:34 PM

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Judie P

My co-worker brought this in to me last night.  It is a great article in the New York Times about the challenges of Sjogren's. 
https://www.nytimes.com/2019/09/09/well/live/the-challenge-of-identifying-sjogrens-syndrome.html  If you cannot use this link, just put in "Challenges in Identifying Sjogren's Syndrome, New York Times.  It was printed on September 10th.

I will miss, once again, our Thursday chat due to a genealogy speaker/presentation.  However, I want my chat friends to know that last week, after a 5 day ordeal of low fiber foods, 3 days of clear liquids, and 3 days Gavilyte (2 gallons), my colonoscopy shows I had one polyp (removed) and a lot of internal bleeding hemohrroids.  I will get the full results in October.  Since I was not able to take any anti-inflammatories (Naproxen before and seven days afterwards), I am in much muscle and nerve pain.  Tomorrow I get to take them again and hopefully I will be able to function again.  Colonoscopy did put me in a flare up.  Ugh.

Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

araminta

So sorry to hear about your difficult time, I hope things start to look up for you now and that you get some relief from the pain.

Thank you for the link, it does underline how diffuse the symptoms are.   I always feel like a hypochondriac when I try to describe how many things are going on!
Dry eyes (MGD), nose, mouth, occasional labyrinthitis,  dry skin , mouth ulcers, constant but fluctuating fatigue, IBS.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Omega 3 algal oil, multivitamins, Evolve eye drops, Xailin eye ointment,  moisturiser (Instituto Espanol 10% urea).

Deb 27

I was just going to sign in to chat. We will miss you. Sorry about the colonoscopy but at least it's behind you now??? I hope there is some comfort in that.... And hopes that the flare will go away quickly......!!!!!!!!!!

Will you get any biopsy results soon??

Take care!
Sjogrens and RA,  Morphea (skin scleroderma), Hashimoto's, 
Nexium, synthroid, HRT, plaquenil,  Restasis, Maxi-tears supplement, L-glutathionne, CoQ10, folate, trintillex,  multi vitamin. lisinopril.