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Anyone had the Avise test?

Started by warmwaters, August 29, 2018, 07:51:29 AM

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warmwaters

August 29, 2018, 07:51:29 AM
I've been diagnosed with Sjogren's for almost 10 years. My rheumy feels there is something else going on, and I've had blood drawn for the Avise tests.  Anyone else had this? Did it help you and your rheumy with new insights?

Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

ohiolady

#1
August 29, 2018, 08:49:36 AM
My daughter has lupus and her rheumatologist ran this test on her.  That is all I know about the testing.
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

Tharrell

#2
August 30, 2018, 05:34:04 AM Last Edit: August 30, 2018, 09:28:03 AM by Linda196
exagen.com/products/avise-ctd/
Looks like it's mainly used to look for lupus, but the panel also tests for sjogren's, ra, mctd, scleroderma. It uses a much more sensitive makers than run normally in rheumatologist office.
Hope this helps
MCTD, sjogren's,dRTA,CVID, sero neg. ra,achalasia,Morvan's syndrome,familial dysautonomia,POTS, MCI, IC. Occular neuromyotonia migraines,raynauds,B6,Florinef, propanolol,sodium bicarb, plaquenil,requip,B2,topiramate, synthroid,diazepam,trulance,enbrel,cevimeline,
arava,omeprazole, mexiletin

trejonina

#3
August 30, 2018, 04:07:55 PM
Hello Warmwaters, please tell me how much does the test cost ? TKS

warmwaters

#4
September 05, 2018, 04:27:13 AM
Still waiting on results and costs, but will update when I know more.

Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

Pete0211

#5
September 08, 2018, 01:50:05 PM
This was the first test my rheumy ran (after my doc and the hospital ran other (negative) sjogren's tests). I was negative on this one, too.

I believe I signed a document stating that I would not be charged more than $40 for the test, and if my memory serves correctly that's exactly what I was charged.
Male 49 y/o; Undergoing Primary SJS diagnosis process; Cevimeline, Ubiquinol, Restasis

warmwaters

#6
September 09, 2018, 02:23:15 PM
Update - after waiting several weeks for results, I contacted my doctor's office. There was some sort of screwup on their end, and the test was not processed correctly.

So now I have to go do it again. I'm wondering if I should bother.
Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers
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