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Started by MCE, June 30, 2018, 06:28:39 AM

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quietdynamics

MCE...Sorry that you have a Dx of a chronic disorder. But, the positive fact that is that now you are on the road to treatment. It may well be a rocky road.. but, it is a step forward and your Dr. will tailor medication and tests according to your symptoms.
I have SJS and Fibro so symptoms can overlap.. however then meds can often both.
When you have next appt (if you have not had these tested) ask to have Vit D and B levels checked. They are often low in Sjogrens and other Autoimmune disorders.. so if needed getting on top of this early is good. Although in the summer sunshine is best source of Vit D not so much in other seasons. Just a side note for you. Even though you feel awful (I used to wake up and feel as though I had gotten no sleep.. just exhausted) a short walk helps. and learning to do deep breathing. When we are stressed we do shallow breathing. Your kids can do this with you..MOMmmm! lol.
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

MCE

Quote from: quietdynamics on July 08, 2018, 11:51:22 AM
MCE...Sorry that you have a Dx of a chronic disorder. But, the positive fact that is that now you are on the road to treatment. It may well be a rocky road.. but, it is a step forward and your Dr. will tailor medication and tests according to your symptoms.
I have SJS and Fibro so symptoms can overlap.. however then meds can often both.
When you have next appt (if you have not had these tested) ask to have Vit D and B levels checked. They are often low in Sjogrens and other Autoimmune disorders.. so if needed getting on top of this early is good. Although in the summer sunshine is best source of Vit D not so much in other seasons. Just a side note for you. Even though you feel awful (I used to wake up and feel as though I had gotten no sleep.. just exhausted) a short walk helps. and learning to do deep breathing. When we are stressed we do shallow breathing. Your kids can do this with you..MOMmmm! lol.

Thank you, I just hope the plaquenil works for me. I need my energy back. I've been in bed for months now. It's depressing. My vitamin D is low and I'm take liquid vitamin D3. My doctor was hesitant to prescribe strong vitamins since I have kidney stones.