Membership drive

[happylife]

Hello,

Per lower end of estimate the prevalence of sjogren is about 0.1% of the total population. Global population is about 7 billion and sjogren patients should be at least 70 million.

This is a great forum for patients to get advise, it would be greater if we can get more patients to register and start communicating.

So if you know other sjogren patients who are not on this forum, kindly invite them and encourage them to participate.

Thanks

[cccourt1942]

I have learned from my local Sjogren's group (large--covers Dallas region...number of people drive 50 or more miles to meetings) they ALL use the groups on facebook.  About 6 months after I joined this forum I "deactivated" my fb acct...it was breached..and breached in a scary manner.  That's when I learned you can't delete or remove your acct.  My grandson instructed me to unfriend everyone (so their names were no longer associated with the acct) and change or remove any other pertinent info (university info, hometown, etc).  Before I left, I did visit the fb accounts.  They are varied and some quite specific, geographically and or symptom wise.  I found them disjointed and many people wanting information and cluttering up the sites.  Information on things other than SjS that is.  In other words, MANY people on SjS fb accountS and NOT interested in this info or format.  Frankly, I don't understand it. 

Just an FYI.  And---you are spot on.
ccc