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Glued lips

Started by Cindy, February 23, 2018, 11:52:40 AM

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Cindy

This is a new things and quiet depressing.

This roller coaster started 6 years ago. I have been able to manage most of the symptoms. Good and bad days for sure. My mouth all of the sudden became extremely dried. For 2 nights my lips in the middle of the night become stuck with one another. Not with my gums but with each other. Like they had glue. Is this normal for everyone? What do you do?

Pete0211

for my lips, I use aquaphor lip repair before going to bed. For the mouth, a dry mouth gel (Biotene, oral7, and GC are some brands) can help if things are really dry, and a typical dry mouthwash/rinse doesn't seem to help.

I've never had anything get stuck, though my mouth has been dry enough to prevent me from eating anything solid and from sleeping for days on end. The only thing that really worked at that point was a couple of IV doses of corticosteroids, and a prescription for an anti-cholinergic drug (pilocarpine or cevimeline).
Male 49 y/o; Undergoing Primary SJS diagnosis process; Cevimeline, Ubiquinol, Restasis

Joe S.

As a kid mine would stick together. Now I have my water bottle to sip from.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

araminta

I put Vaseline on my lips every night.   Xylimelts are very helpful with dry mouth at night, chewing gum in the day.
Dry eyes (MGD), nose, mouth, occasional labyrinthitis,  dry skin , mouth ulcers, constant but fluctuating fatigue, IBS.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Omega 3 algal oil, multivitamins, Evolve eye drops, Xailin eye ointment,  moisturiser (Instituto Espanol 10% urea).

A Mom on Spin

Araminta,

Yes, I often find my lips stuck together in the middle of the night. I just keep reapplying lip balm.  Don?t know what else will help.

Liz
www.mysjogrenslife.blogspot.com
https://www.amazon.com/author/lizwilkey
Primary SJS. RA & lupus. Positive ANA, SSA, anti-phospholipid Antibodies. Large and small fiber peripheral neuropathy