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IV Ports

Started by hannahsutton, May 28, 2017, 05:56:19 PM

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hannahsutton

Hey everyone, I was wondering if anyone has an IV port? Ive just come back from hospital where I had an (unsuccessful) lignocaine infusion. They tried to place the cannula three times, one is now infected and the other badly bruised. One of my friends said her brother has a port that they can inject meds/fluids into and also draw blood.

For the amount of tests and stuff I need I was thinking this might be a good option? Does anyone have any experience with this and would I have a good enough reason to get one??

Thanks :)) xx

vrystaat

My suggestion is to have a skilled Radiologist insert the line.
They almost never fail. They tend to use the brachial vein, under ultrasound control.
Sometimes, they need to insert it into the subclavian vein.
I've had this done about 3 times.
Sjogrens;Polymyositis;Polyneuropathy;Gastritis;GERD, Autonomic Neuropathy, Neurological complications, Trigeminal Neuralgia,Gamma 3 globulin low;Multiple infections;Brain fog; Ocular problems - blepharitis, scleritiis, dry eye,severe eye pain. Possible Inclusion body Myositis.Currently Endstage

anita

I have had a medi-port for 19 years.  The first one lasted about 6 years, and the current one has been in and working wonderfully for the last 13 years.  It is perfect for my monthly IVIG infusions as well and iron and other infusions.  My veins are horrible and this makes any IV or blood draws so much easier.
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

angeldancer

I had one and I would say let a skilled radiologist do it.  I was lucky to get one that was highly recommended.  I also suggest to be put to sleep if you cannot tolerate pain like me.  Numbing the area was not good enough so I had a light sedation.  It took a while for me to heal and of course the doctor blamed it on the sjogrens.  It did help that it was in during my treatments.  My veins lost elasticity and could not handle the treatments.
eagles flight//

Sjogrens, Arthritis, colonrectal cancer survivor, Diverticulosis, fibromyalgia, chronic sinus, chronic pain, kidney stones,  chronic allergies, digestive tract issues, norco, plaquenil, ativan, ambien, lyrica, claritan, neuron tin, celexa,predinisome,

irish

Ports have been in use for many years with good results. I have never had one but have worked some with them years ago as a nurse. I get IVIG and there are people who have ports and receive IVIG on a routine basis. Usually the inability to get into a vein often and easily is the reason for a port.

You would do well to discuss the pros and cons for this procedure and the long term and the long term maintenance of a port. Good luck. Irish

anita

As Irish commented, It's all about the quality of the veins, not what you receive through them. 
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran