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...and now I have ibs also??

Started by ignatz, May 27, 2017, 06:35:35 PM

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susanep

I am so sorry, because one ask me if I have a particular food that irritates my stomach, and I am not aware of any particular one.

Elaine, sorry to hear you are having this issue now.

susanep
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

SunshineDaydream

Three gastroenterologist and one endocrinologist from Cedars-Sinai Medical Center are doing an AMA (ask me anything) on reddit at 1:00 ET today. They'll be responding to questions about gut microbiome relating to IBS, obesity and other topics. Should be interesting. Maybe you will find some good information there.  Here's a link where people are already asking questions (responders return at 1:00 to start answering).

https://www.reddit.com/r/science/comments/6g845d/science_ama_series_hi_reddit_were_dr_mark/
Sjogren's, lupus, OAB and osteopenia
Rx: Evoxac and Myrbetriq
Vitamins and Supplements: A, B complex, C, D3, E, calcium orotate, magnesium glycinate, D-Mannose, curcumin, fish oil, probiotic

ignatz

The AMA sounds interesting I'll check it out. What a great idea, I hope they have a panel of Rheumys for the next AMA.

My stomach's food sensitivities have diminished on their own somehow. Sorry to raise the alarm but generally when I get a new auto-immune type symptom it sticks around (unfortunately). It started back in Feb when I was really miserable so perhaps it was part of a flare. I doubt it's gone entirely but I've been able to eat small amounts of the food that used to cause trouble like onions and asparagus.

Whatever is it I'll take it! I needed something to go right.

Thanks for all the helpful advice. I'm going to start taking metamucil to see if I can improve even further.
SLE with secondary Sjogrens, Raynauds. Plaquenil, vyvanse, prednisone(5mg).

cmclien

Glad you're feeling better now.  IBS was the first thing I developed about 25 years ago.  Severe GERD and initially IBS-D, later and for many years, IBS-C.  Have taken Prilosec for 25 years. I later developed hashimotos, IC/PBS and SJS and was and still am convinced they're all related and start along the lines of leaky gut syndrome.

I have bloating every day of my life, avoided pretty much all veggies but especially those high in fodmaps (broccoli, asparagus, cauliflower, onions (make me really sick), I do eat fruit,  though it doesn't like me). 

I think fiber supplements are the worse thing ever and I avoid them at all costs as they make me much worse.

Anyways, wanted to mention I started collagen supplements and both my IBS, GERD, and IC/PBS are 90% better, I think because its healing my gut.    I started a thread on this today.  Something to keep in mind though if this comes back to haunt you.
Cindi

Age 55-Sjogrens, Hashimotos, IC/PBS/ sometimes,  GERD, IBS, TMJ, Vasomotor Rhinitis, Anxiety, Migraines/Chronic Headaches.  Also had Meniere's as a teenager that went away years later.

Synthroid, Restasis, Omeprazole, Lexapro, Propranolol, Nasonex, Magnesium, Multi, Vit-D, Premarin, Aloe

deniselb

My doctor said try Atrantil so I ordered some, though it's quite expensive and I'm skeptical. Has anyone used it?

I was diagnosed with SIBO a couple of months ago although I've had it for a really long time - a lifelong problem with gas but now I'm belching all day as I can feel the problem moving up higher in my gut. I thought passing gas all day was bad but not being able to pass it is worse. Two rounds of antibiotics costing $600 didn't help. FODMAPS diet seems to help somewhat but not entirely.

When you have four to five day transit time and pain in the middle of your gut, how do you ever figure out on which day you ate the offending food - today? yesterday? the day before yesterday? - let alone which meal.  Meanwhile, there are multiple versions of the FODMAP list floating around that differ from each other. So just trying to pin down which foods are the problem is very challenging. To do an elimination diet I think I'd have to wait four days after trying each new food. I'm trying to work up the resolve for that.


cmclien

Quote from: deniselb on June 10, 2017, 03:04:56 PM
My doctor said try Atrantil so I ordered some, though it's quite expensive and I'm skeptical. Has anyone used it?

Thanks for mentioning this.  I haven't tried it but am going to order it in the hopes it helps my afternoon/evening bloating.  It is pretty pricey I agree but may be worth it if it works as well as most reviewers say it does.
Cindi

Age 55-Sjogrens, Hashimotos, IC/PBS/ sometimes,  GERD, IBS, TMJ, Vasomotor Rhinitis, Anxiety, Migraines/Chronic Headaches.  Also had Meniere's as a teenager that went away years later.

Synthroid, Restasis, Omeprazole, Lexapro, Propranolol, Nasonex, Magnesium, Multi, Vit-D, Premarin, Aloe

Carolina

So five days later.  I began the FODMAP avoidance food plan, added metamucil once a day...and WOW
things have calmed down. 

I'm still having some distress, but nothing like it was.

I am in a FLARE state:  Pain (ache all over), profound fatigue, and depression.

Tomorrow I have my IVIG, so will wait to find out how that hits me 48 hours later.

Here is the link to FODMAP food and how to avoid them: 

http://www.ibsdiets.org/fodmap-diet/fodmap-food-list/

I see a GI specialist next week, not for this problem, but I think this takes precedence.  Of course seeing a new doctor is so hard, since getting 'up to speed on my conditions' takes a huge effort on everyone's part.

I'm also taking the probiotic out of my medicine boxes, AND my Magnesium supplement which is evidently problematic.

Eating some puffed rice crackers....

Regards, Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

bebemoke22

My IBS symptoms seem to go away when I drink a bitter drink such as neem powder mixed with some type of fruit juice. I mixed neem and moringa powder and in water or juice and just jug it down. I go to the bathroom more and have less gas. This may be because neem and moringa have anti-bacterial properties. Things like psyllium husks and bentonyte clay simply clog me up. If you can handle the bitterness, give it a try and see how you feel.
Be one less person harming animals - thatbronxvegan.com