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blogs?

Started by AnneNeville, April 21, 2017, 04:52:07 AM

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AnneNeville

What are your favorite blogs to follow for Sjogren's and autoimmune issues?
Diagnosed with primary SS 2/2017 after 20+ years. Double vision from 6th nerve palsy, severe anxiety (now gone!), fatigue, dry eyes. Now: 12.5 mg Prednisone (burst), 200 mg Plaquenil, Prozac, Wellbutrin, Restasis, Xiidra.

A Mom on Spin

I'd be interest to know too.  I don't think I've found an active one yet.

I have a blog which I post on a not-so-regular basis.  It was out of commission for a while and I got rid of all of the followers and subscribers.  I would like to post more regularly if I thought anyone were reading.

The link is at the beginning of my signature line

Liz
www.mysjogrenslife.blogspot.com
https://www.amazon.com/author/lizwilkey
Primary SJS. RA & lupus. Positive ANA, SSA, anti-phospholipid Antibodies. Large and small fiber peripheral neuropathy

SjoDry

I write a blog...very current...then missed awhile with health stuff and then recently posted.

It is listed in my profie/meds line. (SjoDryandParched)

SjoDry

Judie P

SjoDry, your blog is great!  Thanks for the positive suggestions!  Love and hugs, J
Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

warmwaters

Though she is posting infrequently these days, I always read http://www.reasonablywell.net, which is by a Sjoggie named Julia. She has a wicked sense of humor, and is a nurse, so is good at explaining what is happening to her.

I still use it as a resource. For example, when I was deciding to try Rituxan, I read all her posts on her experiences.

Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

SjoDry

Ditto. Julia has a great blog.

SjoDry

irish

Glad this was brought up as I had forgotten about Julia's blog. It is good. Thanks. Irish


Nymph

I really like Despite Lupus, too.
38 y.o. teacher; anti-CCP+, RF+, otherwise seronegative; POTS; Plaquenil, Allegra, Depakote, Neurolink, C, probiotic, multi-V, magnesium, quercetin, NAC, DHEA, fish oil, D3, turmeric, ubiquinol; <3 my neti pot