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Has any of your weird symptoms turned out to be from a vitamin deficiency?

Started by paulc182, December 13, 2016, 09:06:04 AM

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quietdynamics

SJS Rheum tested and lab results showed deficient Vit B and D.
So therapeutic doses of both with labs to monitor.

I did experience with addition and rise in levels lessening of bone and muscle aches/weakness and tingling. (Vit B12 is important for brain and nervous system) Vit B sublingual is recommended (how one Dr. takes it herself)

Vit D3 is the form I was prescribed.
Mega doses of Vit d can be toxic, therefore the labs when given therapeutic doses and then the leveling maintenance doses.
http://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/expert-answers/vitamin-d-toxicity/faq-20058108

Vit A,D and E are fat soluble, so build up. Unlike C and B which are water soluble and flush .. well you know where if you take too much.

*Both fish oil and Vit E are/can act as blood thinners .. so something to be aware of.

Supplements and herbs need to be screened through Dr. (I do pharmacist too)
http://umm.edu/health/medical/drug-interaction-tool

Can't recall if it was a Wallace Sjogrens Book, where I read about mal-absorption of nutrients due to gastro enzymes in patients being off. So even with a careful diet, we can be off in certain areas and present possibly with gastro symptoms.. bloating, diarrhea,gas, etc. So our colonoscopy comes back "unremarkable".
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

Nomad

I had my vitamins D checked a year or two ago and don't recall the number but it was high-normal.

I take 5000 iu daily
4000 or 4500 is in Summer
D3 gel capsules
I might get tested again. We'll see. I might have to lower my intake a little.
Love the stuff!
SLE, Sj.  Syndrome, IC, Atypical Trigeminal Neuralgia, ITP (low platelets)... Various meds and lots of vitamins. Trying to eat healthy; seems to help a little.

Carolina

No test has shown any vitamin deficiency, and I have had many many tests.  I take super folic acid, and iron (I'm anemic) and copper (I do have a copper deficiency which is almost unheard of and mine is idiopathic).  I take E and A, and a multivitamin, too.

I think those of us with Immune Disorders often have trouble absorbing vitamins and minerals, even tho' our diet is rich in all the nutrients we need.
With all the supplements I take I NEVER have an excess of any of those substances when tested.

It is important to have all the tests related to our weird symptoms, as something might show up that is the cause.  However, for me, no deficiency has been found (except  copper, which as I said, is so rare as to be non existent...and I take 10 mg of copper a day, and now I do have some copper in the tests, but still below normal....before I started the copper I had NO copper in my tests.  Weird.)

I am re-examing some of the supplements I take, hoping to eliminate some as I go forward.  But that would be things like cistanche  and some others.  I ALWAYS check my supplements with the NIH evaluations, to be sure there is NO HARM in taking them.

We do what we can, and inform ourselves to our best ability.

Hugs,  Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

paulc182

How expensive is it to get full panel vitamin test? I got my D tested here in Taiwan and it was quite pricey compared to every other blood test I got. I think mines was at 11, which is not good LOL
My docs don't seem to care, so I'll see what the rheumies back in SF have to say about supplementing.
Anyone here try the Coimbra Protocol? 1,000IU for every 1kg you weigh

quietdynamics



From vitamin D to hormone D: fundamentals of the vitamin D endocrine system essential for good health1,2,3,4
© 2008 American Society for Clinical Nutrition  Am J Clin Nutr August 2008 vol. 88 no. 2 491S-499S

"This article identifies the fundamentals of the vitamin D endocrine system, including its potential for contributions to good health in 5 physiologic arenas in which investigators have clearly documented new biological actions of 1?,25(OH)2D3 through the VDR. As a consequence, the nutritional guidelines for vitamin D3 intake (defined by serum hydroxyvitamin D3 concentrations) should be reevaluated, taking into account the contributions to good health that all 36 VDR target organs can provide."

"Scientists and nutrition experts at the 13th Vitamin D Workshop held in 2006 agreed in a consensus statement that "about half of the elderly in North America and two-thirds of the rest of the world are not getting enough vitamin D to maintain healthy bone density, lower their risks for fractures and improve tooth attachment. Such vitamin D insufficiency also decreases muscle strength and increases the risk for falls and is even associated with increased risk for colorectal and other major cancer"

" 1) vitamin D3 is the only naturally occurring form of vitamin D in humans and other animals and 2) vitamin D2 has only one-third the biological activity of vitamin D3 in humans (7). Given the significant differences in the biological activity of vitamin D3 and vitamin D2, describing a clinical trial by writing that "the patients received 10 ?g (400 IU) of vitamin D" is not a best practice when the patients actually received vitamin D2, whose biological activity is equivalent to only 3.25 ?g (130 IU) vitamin D3."

FUNDAMENTALS OF VITAMIN D AND ITS ENDOCRINE SYSTEM FOR GOOD HEALTH
*My Dr. uses the guidelines, recommendation of the Endocrine Assoc.)



http://ajcn.nutrition.org/content/88/2/491S.full


Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

Lotus1

I think most symptoms for anything are linked to a vit deficiency.
It's a matter of working out what deficiency & the best vit etc.
Not easy, continual body maintenance it seems!
Keeps our brains active, eh lol
It's not always easy, but keep laughing, friends, the best medicine they say.....

Lotus1

wendyoh

I found out this winter that Zinc makes me feel better. I took it a few months ago to combat a cold coming on, hylands zinc cold tablets, and learned it made me feel better and continued, I bought some zinc drops now too and alternate form. I think it gives me more energy, less pain and helps mood.
sjogrens, cervical stenosis, bulging cervical discs 4 level, DDS, DJD, emerging vertigo, cfs, fms, gerd, plantar fascitis, corneal erosion, some other stuff :)
not trained in medical field so just share my experience and opinions as a consumer and lay researcher trying to get more well-ness