Now they say it is CNS...not so sure.

[trc1962]

Had my EMG and the dr. said it was normal enough to not even go above my knees. Now he really wants a lumbar puncture but I have a significant chiari and both my rheumatologist and I am nervous about doing that at all. Maybe I am crazy, but how can these small fiber type symptoms be related to central nervous system involvement? I am just wondering if when they did the skin biopsy in July (on the leg where the neuropathy isn't bad) that it wasn't bad enough to show up? I am grateful - sort of - because I haven't been able to have bowel movements without milk of magnesia and suppositories for 3 months and now I have diarrhea several times a day - although it is not great for elementary p.e.! I do have a second lip biopsy next week and if it is positive then I guess we have direction. Life is never boring that's for sure. Very glad for the weekend!