questions on neuropathy, it is worsening...

[Carolina]

Julie, I didn't know whether or not you were asking me about my Vitamin D level.

So I checked it.

I take a Vitamin D3 supplement and with it my results are:

                                       Your Value   Standard Range
Vitamin D Total, 25OH   34 ng/ml   30-100 ng/ml

So even with the supplement my number is on the low side, but I don't have a deficiency.

Stress, I've been very stressed by Sciatica, limb jerking, 94 degree heat, and constant medical tests.

It will get better, right?

Hugs,  Elaine

[trc1962]

I am going to ask my rheumy to check vitamin levels to see if that could be effecting me. A few years back I saw a neuro that said I had no thiamin levels in my body and I was on a supplement for quite awhile - it wouldn't hurt to ask my rheumy to check things. I dropped my prednisone down to 40 mg (at rheummy's request) the past 3 days and I was hurting sooo bad I had to take 10 more...it helped quite a bit, so I guess that will help him know that despite normal sed rate numbers this is inflammatory in nature. I am convinced.

[ktfabian]

I have bizarre NP. I feet itch. Then when it gets bad, I get the bee sting feeling and generalized pain and tingling.

When the itching first started, I thought I was getting bitten by small spiders or something. It would only be one small area and I would scratch myself to the point of bleeding and bruising. My Rheumatologist said, no, that's not neuropathy, it sounds like and allergy and gave me a long list of substances to avoid. Three months later, I'd ruled out an allergy to each of the items, and he agreed that it had to be Neuropathy of some type.

Today, I take Neurontin for other nerve problems I have related to a back injury and Klonopin for the Neuropathy. If I miss a dose of the Klonopin, though, I'm back to scratching myself bloody and get the bee stings and pain.

My family doctor says I do everything differently than expected and she's learned to listen to what I say because she believes I know my body best. Too bad it's taken so long to find such an understanding doctor.

I hope you can find a way to get your neuropathy under control,
Tracy