feeling sick in 80 degree weather/sun. this is ridiculous. please help

[trejonina]

Hi Valene,I take doxy for my sjongrens (and maybe lupus as I'm ANA positive.)and seronegative RA. I'm doing the protocol for people with sjo.  lupus,RA,as do others in www.rheumatic.org , click on medical stories and see that it's not only for RA.I'm doing three times week :MON., WED., FRID., 100 mg twice daily, NO  Plaquenil or any other inmunosuppressant whatsoever and my conditions have not progressed.Kidneys are good,etc.Please tell me what dosage you are taking??I also take Arcalion, for fatigue nonstop 1 daily (sulbuthiamine,it's made in France.)Thank you again.

[Judie P]

I know no one has posted since 2012, but this has helped me a lot today.  We are having a birthday party for my husband's 50th (yes I marry them young, I am 64).  I was diagnosed with early stages of Sjogren's two months ago.  The party will be in Pleasant Hill, California, and it is already 95 degrees there.  The ranch house is not air conditioned.  It is not unusual for the East Bay in Northern California to reach triple digits in the summer.  Long story short, it has been very hot here for the last couple of days and today I began feeling weak, light headed and nauseous.  I just feel ill.  I also get out of breath.  I am not sure what I am going to do tonight at the party, but I must go.  At least I will be in good company... another attendee has RA and another has sarcidosis.  We will all try and stay as cool as possible.

[olmphoto2]

Judie P. please know that you very well may be at risk for heat exhaustion or even heat stroke...at far lower temperatures than you cite here.  I suggest you read this thread I am linking...we are very poor at sweating and that is the primary mechanism by which our bodies can cool, regulate body temperatures down to normal ranges...  https://sjogrensworld.org/index.php?topic=25902.msg276741#msg276741
Be very careful!
Welcome and thank you for posting...this is a purty durn awesome community! 

[olmphoto2]

Here is another good thread on the forum to review regarding this dangerous heat issue:  https://sjogrensworld.org/index.php?topic=26514.msg284052#msg284052

[finallyadx]

Hello - so very sorry to hear you are suffering so much in the heat and sun...I feel your pain. My sun sensitivity has gotten worse since being on plaquenil.  I have to use a special sunscreen to help not get burned.  I have three fairly young children who love to go to the beach and the pool in the summer so it is difficult for me to stay out of the sun.  I feel terrible at night - headaches, etc.

I hope you can find a way to stay comfortable in the heat.

Take care - sending positive thoughts your way.

Kim