death from...

[Joe S.]

A number of us have died over the years from other ailments as Sjogren's is not considered life threatening. Internal organ issues and lymphoma are what are commonly mentioned.

Does anyone know the percentages and diseases?

The America accessible internet does not seem to have much information and I am currently blocked from other nations. So if you can find an answer to my question please post it.

[Carolina]

Mortality and causes of death in primary Sjögren's syndrome: a prospective cohort study.


CONCLUSION:
No increased all-cause mortality could be detected for patients with primary SS compared with the general population. When subgroups of primary SS were compared, excess mortality due to lymphoproliferative malignancy was found in patients fulfilling the AECC, the strongest predictor for unfavorable outcome being low C3 and/or C4 levels at the time of diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/15077310

Hugs, Elaine

[Joe S.]

Thank you Carolina. I see it is forms of lymphoma. I rememered a number of people that have died from lung and heart issues. So I was looking for other things we may need to be aware of in our health management.

[lighthouse33]

hindawi.com/journals/jir/2014/647507/

Clinical Course, Prognosis, and Cause of Death in Primary Sjogren's Syndrome

Conclusion

Summarizing our results, we concluded that pSS is composed of subgroups displaying a different clinical picture and mortality risk. During our work, we identified clinical and immunoserological features characterizing Hungarian patients. Based on significantly worse survival ratios and the concomitantly increasing mortality risk, pSS subgroups with polyarthritis, vasculitis, LPD, or cryoglobulinemia should be clinically classified as severe pSS. Consequently, we recommend the use of targeted diagnostic protocols for identifying patients with severe pSS. Moreover, close observation of cases associated with polyarthritis, vasculitis, LPDs, or cryoglobulinemia is also essential.

Systemic Sjogrens: More Than a Sicca Disease

Systemic Sjogren's May Be Life Threatening

the-rheumatologist.org/details/article/6904931/Systemic_Sjogrens_More_Than_a_Sicca_Disease.html

[lighthouse33]

Migraine Triggers and Comorbidities: Sjogren?s Syndrome

migraine.com/blog/migraine-triggers-and-comorbidities-sjogrens-syndrome

[Joe S.]

Thank you for your reply lighthouse33. I will have to switch computers to try your link again. I do not believe proper follow up has been done in the USA. I have seen better follow up on other health issues in other countries like Japan and Australia. So I am thinking other countries may have better follow up then here.