How many hours do you sleep? Sleeping too much; coughing too much😳

[Kathy57]

Elaine,

I think you are on to something here.  I've been taking generic mucinex twice per day and I think it thins the mucous but I cough quite a bit, still.  I do feel like I'm choking in the middle of the night so we are alike there.

My new internist (I think she is going to be good - she at least knows what Sjogrens is and realizes it is a systemic disease), has just put me on Nasonex for the inflamation and terrible post nasal drainage.  She told me I would maybe see a difference in a couple of weeks and I should let her know if I want to continue on it.

I've been taking it and also my Dulera has been increased for my asthma.  It just could be my imagination but I think the terrible cough might be decreasing?  Time will tell.

Deb,

I can take the Precacid twice per day if need to and sometimes I do.  I think I also need to "double down" on not eating before I go to bed.  The other night I had popcorn and maybe I shouldn't have.  I know I have reflux and I always sleep elevated on a wedge and a pillow on top of the wedge.  That helps.

Thank you for your suggestions.  I feel good about the Nasonex now.  What's one more med?  Lol!

Kathy

[Carolina]

I used Nasonex for ever and ever.  The thing is you have to use it for quite  awhile before the benefits kick in, and then they are wonderful.

Recently I switched to Nasocort, which it OTC and much much cheaper.

It works as well, as far as I can see.

Good luck, it's not fun to be choking, for sure.

Hugs,  Elaine

[eye2dry]

hello Kathy.

I love to sleep!!!!!!!!!!!!!!!!!!

I sleep 9 hours at night and then maybe a 4-6 hour nap in the day.

I have been known to have a sleep marathon on the weekends (when I still worked)
for 18-30 hours. with waking up to get a drink or go to the bathroom. when I get
like that, thankfully not too often, my husband just lets me go.

Of course, I really never wake up feeling rested.

As for the cough. I do cough many times during the day and I can
feel phlegm in my throat, especially in the morning. I always felt
it was a sjogrens thing.

I would try thinning the secretions with increase fluid and try Mucinex.
You want to get that nasty stuff up and out.

shelly

[Kathy57]

Shelly,

I agree that this coughing, dryness, and phlegm thing is a Sjogrens thing.  I think it attacks us all differently and I think it loves to mess with my sinuses and upper respiratory system! 

It could be worse, I guess.  Do you ever have times when it stops?  I hope this isn't going to happen for the rest of my life.  Maybe when the weather gets better I'll get a reprieve?  Maybe when the Nasonex and Dulera kicks in.

I'm not working now and I'm hoping to be able to do something part time this Spring.  I don't have small children at home and I'll be able to sleep, sleep, sleep.  😄. I just want a little "slush fund" to spoil my grandchildren and to feel a bit more useful.  Wasn't planning on retiring this early!😞

I'm with you in that I never feel totally rested.  I'm sure all of us have trouble adjusting to the "new normal".

I'll be babysitting my grand baby for two days this week.  I love him so much but I am tired after he goes. 

At least my family realizes that I'm not "contagious" and can't give anyone my cough or my Sjigrens!

Thanks for your insight.  It is so helpful to understand that I'm not alone and yes, this is another part of Sjogrens!  Lucky us!

Kathy