Lichen Sclerosus

[Newfyboy3]

Hi.
Does anyone here suffer with Lichen Sclerosus?
I would be interested to know how common it is among Sjogrens affected people.

[Deb 27]

Did you get the diagnosis of LS by your Dr. or did you have it confirmed by biopsy? I hope it's not real bad for you.
I've been told by one Dr. on my yearly that matter of factly that I  have LS but they never did the biopsy to confirm or acted like it was any kind of big deal that needed treating...  He said I had some white patches and that was all he said.  This was before I was diagnosed with SJS. They said the only way to know for sure is a biopsy. I just don't feel like having one. I had mostly a lot of atrophy down there, some burning and got back on estrogen. That seems to have helped me. But I am sure the bad dryness from SJS hasn't helped much. I also had a lot of skin splitting. I have not had any of the awful scarring you hear about. Again, much better on the estrogen. I use a skin patch and I am trying out the estring soon.