Hello everyone: Grandmother diagnosed with Sjogrens syndrom

[Majed]

Warmwaters and Cccourt1942:  Thank you for the kind words and the information.  I hope that by posting my grandmother's experience in great detail, it'll help someone in the future the same way that all of your information has helped me. 

Following the vasculitis diagnoses, she was given a nerve conduction test.  We're just waiting for results on that at the moment.  I'll report back if we find a effective treatment. 

[Majed]

Hello everyone,

So, my grandmother is going to be treated with a series of Rituxan injections.  I think they're targeting the Vasculitis symptoms, since they're the most debilitating.  Her only other Sjogren's related symptom is dry eyes, at least at this point; she was dealing with fatigue, anemia, and no appetite early in the diagnoses.

Does anyone have experience with Rituxan?

Thank you.

[Majed]

Hello,

I wanted to post an update about my grandmother's condition for future reference.

She just started a 6-month regimen of cytoxan and has tolerated it fairly well.  The regimen consists of 1 infusion per month.  It's still too early to see if it's helping, but she thinks that her right hand has gotten stronger (it recently started to deteriorate like the left hand) and a persistent shake has subsided.  Fortunately, it sounds like vasculitis is a treatable condition with the possibility of full remission. 

Thank you for all the help and kind words.

[Katybarstool]

Majed

Thank you for updating us on your Grandmother's treatment. Please give her our very best wishes.

And thank you for being her advocate on the forum.

Kathyx

[warmwaters]

Thanks, it is always good to hear the outcomes.  My best to you and your grandmother.