Feel like nobody understands......

[Autoimmunity]

I tried sharing that link with my SO, so MAYBE he would GET it. He reads it, and says " I don't get it." Then he goes in the other room, plugs in his radio and tunes out.

I had hoped it would help him to understand. Sailed right over his head.

There are days, and this is one of them, that the world is simply too big. My best friend who lives out of state - her internet has been down for days which also knocks out her phone line. So I can't call her and cry on her shoulder.

So here I sit, crying, 'cause it hurts, you know? It's hard enough he lost his job, didn't work enough hours to even get unemployment on the job he had, so the only source of income is MY disability check, and I CANNOT "carry" his load. I simply cannot.

So once again, he tunes out and I get to figure out how in the ahem I am going to get thru the next three weeks, on top of getting scoped top and bottom "floors" day after tomorrow, and something as simple as him even having the cab company's phone number, making a call to be sure they can pick us up after is apparently too much effort, I won't be able to drive for 24 hrs and my SO has no DL.

It must be nice for him in to live in lala land. I'm about sick of it. Sick of being sick and about sick of him residing in lala land oblivion.

I'd be quite lost without all of you. Right now it's the only emotional support I have.

Saw my vascular doc today, he adjusted my BP meds and wouldn't you know? For the first time in my visit summary, Sjogren's was listed under "current medical issues this visit" (along with a gazillion others).

Lighthouse 33? I so appreciate you sharing that link. Since 1985, I have struggled to find the right words on that very topic and every element mentioned. There was a time I wanted to scream if I was told one more time "but you're so smart. How can this possibly be hard for you?" as one of many examples.

Litli Wlowa

I'm so sorry!