News:

These message boards are a friendly helpful place, please post with thoughtful consideration of others. Thank-you.

Main Menu

MedPage article on complications of SjS

Started by Sooki, April 27, 2013, 07:40:49 AM

Previous topic - Next topic

Sooki

Here's a link to an article summary by MedPage Today on statistics of people with Sjogrens getting complications.  Pretty sobering. But we all knew that. 
http://www.medpagetoday.com/MeetingCoverage/BSR/38713

Here's one interesting set of statistics:
"Three-quarters of the patients were seropositive for anti-nuclear antibodies, more than half were positive for rheumatoid factor, and a third were positive for anti-Ro/La antigens. "

So, something to show doctors - how many of us are seronegative!
68 yo, Sjogren's, Lupus, Hashimoto's, fatigue, MGUS, peripheral neuropathy, ocular rosacea
Plaquenil, CellCept, Synthroid, Atorvastatin, Xiidra, doxycycline, D3, biotin, B12, ALA, DHEA, Ubiquinol, CPAP, D-mannose, Paleo AIP, fish oil, Cliradex wipes

Carolina



""We have carefully observed these patients over 25 years, and the main message of this study was that patients with primary Sjögren's syndrome have a substantial burden of disease over their lifetime, and careful surveillance is clearly warranted," she concluded"

Thanks, Sooki, for the link.

Hugs

Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

long time dry

Thanks for posting this.  It is indeed very sobering.  Seeing the statistics puts the entire situation in perspective.

odie

This abstract is short and to the point so that if it's presented to a doctor at an appt he or she can see the relevant information quickly.  Now I want to get my hands on the full study to see the details. I'm trying to arm myself with as much information/ammunition as I can to bring to my doctors to bring them up to date.

Skylar

Definitely sobering, but not surprising.

Cassi307

Thank you so much for the link. I shared it with my boss so he has a better understanding of what I am dealing with. They have been pretty supportive so far but I don't think they understand that it goes beyond the dry eyes and joint pain. Great article.
Sjogren's, seronegative RA,  ckd, hyperparathyroidism, asthma,  osteoporosis,  Meds:  amlodipine, low dose Prednisone, calcium, sodium bicarbonate. Also, multivitamin and B complex