Sjogrens Patient Conference...anyone?

[quietdynamics]

I just checked the rates on they Hyatt website: 129 seems to be their regular rate anyway?
With AAA $116- 122 /night
http://bethesda.hyatt.com/hyatt/reservations/flow6/propSelectedHotelRates.jsp?xactionid=13d188d0a2a&_requestid=349962

[NJteacher]

Having been recently diagnosed with Sjogrens, I've decided to attend the conference. I'm looking forward to learning about the latest treatments and especially looking forward to being with people who 'get it'! Hope I get to meet some of you!

[SjoDry]

Super, so glad you are coming. I too, will be in attendance.

You can recognize me by my: Pale, wrinkly skin, red eyes and the ribbon on my nametag.

Looks like it will be a great conference.

SjoDry (aka Sandy)

[NJteacher]

I'll look for you SjoDry for sure! What color ribbon? I'm 5'8 - dark hair - medium build. I'll be the one coughing, putting drops in my eyes, and sucking on a lemon candy. Lol - so will everyone else, I guess!  Really hope to see you, Sandy 

NJTeacher aka Donna

[SjoDry]

Not sure of the ribbon color (maybe they do blue for the Sjogrens Foundation).

Here's another clue...a lovely fever blister left over from my latest respiratory/sinus/cold combo.
Look for the lady with a chapped mouth & under nose area..that can best be described as "clown mouth".   

P.S. I actually had a Tshirt made (which I will be wearing) which says: SjoDry and Parched...you won't be able to miss me LOL.

SjoDry

[NJteacher]

SjoDry, I'll make sure to check out all tee shirt wearers and find you😀 I hope your sores heal by then. Anyway, it doesn't matter!!

[SjoGirl]

Yes and looking forward to it,
.

[Cryssann]

Hello all! I was just curious if you think this conference would benefit my daughter at all? Since she is only 10, I wasn't sure if it would help her or not. Have any of you ever attended before? It would be wonderful of there were other kids there. Hopefully, I can attempt to get there. Thanks for input!





Crys

[slccom]

Contact the conference organizers and ask. If they don't have a reception or other get-together for people with Sjogren's, they should. If nothing else, you could congregate and order a pizza!

Even if your daughter wouldn't benefit, and I doubt that she would unless there are other kids there, you will learn a lot. Connecting with some teens/20-somethings would be great, and maybe she could get a "big sister" or "big brother" to help her.

I wish I could go!

Sharon

[anabanana]

All of you that attend, we hope to hear about it...
I would be interested in what dr birbaum has to say about the neurological aspects in SJ..
Second, other possible causes of dry eyes/dry mouth combo, besides SJ if its discussed...which may give some of us more insight into our presentation, if we are seronegative...