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Washington Post news story about a women with a "medical mystery" - Sjogren's!

Started by odie, April 16, 2013, 03:47:34 AM

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odie

It took her many years and many different doctor visits to finally find the source of her illness.  Sound familiar? This kind of exposure has to help the medical community begin to think about and test for it earlier on .... one hopes!

http://www.washingtonpost.com/national/health-science/a-complicated-case/2013/04/15/5726897a-8736-11e2-98a3-b3db6b9ac586_story.html

Cassi307

Thanks for sharing that Odie. Interesting that she had an elevated white count. When I questioned that with a prior md I was told not to worry that it must be my normal!
Glad to see this will raise awareness. We need more stories like this.
Sjogren's, seronegative RA,  ckd, hyperparathyroidism, asthma,  osteoporosis,  Meds:  amlodipine, low dose Prednisone, calcium, sodium bicarbonate. Also, multivitamin and B complex

gmomjuju

That was a wonderful article that I think many of us can relate to.

Thanks for posting.  It has made the start of my day a wonderful one!

Judy

anabanana

Focal lymphocytic sialadenitis less than 1 focus, Dry everything, Neuro symptoms, Muscle weakness, Fasciclations, High inflammatory CRP,Tremor,Balance issues,Dizziness.
Take vit-D3, fish omegas, calcium, magnesium w/B6, B12, Restasis, Systane Drops, Seronegative

powderpuff

Thanks for the article Odie, it sounds familiar. Thinking back I realize my symptoms started probably 15 years ago with dry eyes. As many of us do, I adapted to so many unordinary symptoms throughout the years. Unfortunately,  adaptation is a result of dismissive health professionals. Stay strong and never give up! PP

finallyadx

Thanks for posting - very informative and so very much like my history, etc. too.  I had a neurologist who after I had a spinal tap and several MRI's of the brain and neck, told me that if I worked outside of the home, he would think "I was looking to collect disability and trying to get him to write a note as such."  Needless to say, I fired that neurologist and changed PCP's...thank goodness because that is what lead me to th SJS dx in January of this year.  We are not "crazy", we all have so many different symptoms, etc., but everything we feel is real.
Primary ss dx 2013, plaquenil, vitamin d, iron supplements, vitamin b12, d-mannose for chronic UTI's, magnesium for heart palpatations and Zinc