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Neuropathy and neurotic pain as a side effect of Plaquenil?

Started by Myshkin, January 23, 2013, 01:38:47 AM

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Myshkin

January 23, 2013, 01:38:47 AM
I went for an emergency visit today at the reumatology ward at the hospital, but it wasn't my regular doctor. A young guy who kept checking with an older doctor.

The last week I have had the worst neuropathy, jerking and pain shooting down my legs. It has been killing me...

They ended up suggesting that I try to stop Plaquenil, that I resently started. I was a bit sceptic - them not being my regular doctor, whom I am a big fan of.

But then I got home and looked at when I actually did fill in my prescription for Plaquenil. One week ago exactly... The day before this heck started.

There could be one more contributing factor - I have epilepsy also and I am also on epileptic medicine, Topamax. So maybe some weird interreaction.

So based on the timing I guess they could be right after all. But have anyone else heard of this? I can see neuropathy listed as a rare side effect, but they'll list anything on those lists....
Newly diagnosed i 2012 with Sjogren's and feeling like crap. Just started Plaquenil and try to learn to live with the new me. Also joined by temporal lope epilepsy, auramigraines and PCO.

Ark mom

#1
January 23, 2013, 07:12:56 AM
So to hear that you are in pain!  I wish I had advice for you or knew something that could help you.  At least I can offer my support! 
41 yo with Sjogren's (sero-neg), FMS & sub-clinical Graves; Plaquenil, Evoxac, prednisone, Restasis, Cellcept, gabapentin, duloxetine

Myshkin

#2
January 23, 2013, 08:46:19 AM
Quote from: Ark mom on January 23, 2013, 07:12:56 AM
So to hear that you are in pain!  I wish I had advice for you or knew something that could help you.  At least I can offer my support!

Thank you. That does mean everything. No one else really understand
Newly diagnosed i 2012 with Sjogren's and feeling like crap. Just started Plaquenil and try to learn to live with the new me. Also joined by temporal lope epilepsy, auramigraines and PCO.

gardenlover

#3
January 23, 2013, 08:56:33 AM
Timely post.  Sorry to hear your trouble!  I just started plaquenil myself and had to go to the doctor because of such intense back pain and pain down my legs.  Interesting....

Myshkin

#4
January 23, 2013, 10:17:21 AM
Quote from: gardenlover on January 23, 2013, 08:56:33 AM
Timely post.  Sorry to hear your trouble!  I just started plaquenil myself and had to go to the doctor because of such intense back pain and pain down my legs.  Interesting....

Really? When did that start? I got the dates wrong (ofcourse...) I started Plaquenil on january 7th, and my troubles began wednesday 16th.
Newly diagnosed i 2012 with Sjogren's and feeling like crap. Just started Plaquenil and try to learn to live with the new me. Also joined by temporal lope epilepsy, auramigraines and PCO.

Myshkin

#5
January 23, 2013, 10:18:16 AM
But.... I think I have just started to experience an increase in energy due to the plaquenil. Oh how that was good. I don't want to stop that :'(
Newly diagnosed i 2012 with Sjogren's and feeling like crap. Just started Plaquenil and try to learn to live with the new me. Also joined by temporal lope epilepsy, auramigraines and PCO.
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