stress test report and other stuff

[quietdynamics]

Irish ... how are you and your husband doing?

[irish]

Hi, I think we are still alive. Hubby has 2 more infusions left of the tobramycin. We drive 30 miles each way for this. His lungs have dried up considerbly, but he still has some infection down there. He doesn't cough much now but his cough is still pretty ragged and his broken rib is still giving him fits--it is better though and the bruising on his chest is finally starting to absorb.

Sunday las antibiotic infusion and then leave early Monday morning to drive 2 hours so we can both get IVIG and he has appt with immunologist. Then we drive 30 miles to our son's and stay overnight and visit the grandkids. On Tuesday morning we drive about an hour for his cat scan with dye and appt with oncology. In the afternoon we drive about 2 miles from the oncologists for pulmonary appt for both of us. Drive home 2 hours then.

We can't wait for next Wed as we plan to sleep in and rest. Hopefully. You all know how that goes.

On top of all this we have needed to trade off our 1997 SUV and on Wed afternoon we were looking at cars and there was a used SUV with his name on it. We traded cars that day.  Hubby was in lots of pain but refused to take a pain med so he could drive the SUV home. That was unexpected stress for both of us. We couldn't pass up the good deal cause it is hard to find used cars with lower mileage. We don't trade very often either as you can tell.

See next page. Irish

[irish]

We are sort of in a holding pattern for now until we talk with pulmonary. His pseudomonas is resistant to everything except the tobramycin so his options are running out. I was just checking the calendar and all his appts and series of antibiotics and prednisone in the last 6 months. It has been a full time job just keeping up with his antibiotic changes and the burst and tapers.

I have a system pretty well worked out so it goes pretty good. The thing that drives me crazy is trying to keep all the meds ordered. Hubby has plans to help me clean up the house the throw things out. I think that he is coming to terms with his mortality. It has taken him longer than my feelings toward my mortality. I have wanted to get things in order for years and he has been in denial. Guess he thought we would both live forever.

I have always said that if I could get things in order around here I could die happy. My folks had so much work for my sister and I that I have never forgotten that. I have always swore I wouldn't do that to my kids. Dying isn't the hard part, it is cleaning up from the living that is the challenge and so emotional.

Stay warm all and out of the snow and wind. Could be a nasty weekend in the USA. Irish

[quietdynamics]

"Hubby was in lots of pain but refused to take a pain med so he could drive the SUV home."
Men Gotta' love them...how they love new toys...lol.

Oh my, so much driving, so many days in row. How do the two of you do that. A caffeine IV?

"The cleaning".. makes me think of 'nesting'

I was lucky in that Mom had been getting her home ready for sale and she wasn't a saver anyway. There was an issue in the basement ... so everything was tossed by the workers and she had the garage emptied. I need to contract some minor damage from in the spring from Hurricane Sandy.

Here at this home is a totally other issue... hopefully when we get into gear to have work done (starting this spring/summer? roof, flooring...dampness in the basement from a storm...groan).

Hmmm..Hubby has the walk-in closet 'filled to the max'. It can hide all 3 cats...yet like me he wears the same favorites! That fit...lol.
I have the small closet. I just change the look by playing with long scarves. 

Godspeed Irish, you have been a woman with a mission.