Cystoprotek for Interstitial cystitis

[Cindy]

For those of you with IC, have you tried Cystoprotek for your Interstitial cystitis? I ordered the supplement and I started taking them last night and my symptoms are worst. I was very hopeful and I feel so sad again. None of the medicines I take really help me, plaquenil?? Ummm maybe with my hair loss, evoxac?? NOT, prenisdtone? Not really and now this. I feel my body is not responding to anything. I have a bday party for my son tomorrow and Im so upset not crying but angry.

[jazzlover]

What's in it?? Have you tried Elmiron?

Diet?? (no acidic foods)

[Cindy]

Im taking prelief before eating anything and Uribel to calm the symtopms. I found Cystoprotek when I was reading the IC-network. They sell it there and in amazon, the reviews are great but like all the medications it doesnt work in everybody. Not sure whats  in it.
I read Elmiron only works 30% of the time with my luck is not going to work with me. My gyn called me today which I was surprised, he wanted to check on me and told me that he was going to send a prescription for a bladder relaxer and take it from there, he said that to have an IC diagnosis we have to go step by step, he can prescribe Elmiron but not yet

[Sleepy In Seattle]

Cystex helps me - nothing else will - but everybody is different. SO SORRY you are going through this - it is absolutely the most miserable pain...I don't think anybody who hasn't had it can understand. 

[jazzlover]

SO SORRY you are going through this - it is absolutely the most miserable pain...I don't think anybody who hasn't had it can understand. 

- TRUE!! It was so severe for me that it ended by teaching career.

Cindy .. Did you read the thread on the connection between cortisol and IC?

[Cindy]

Jazzlover are you better now? Yes I read the post, Im sorry but what is cortisol?  Are you still taking it? How do you if your body needs them?