Can someone help me decide where to go from here?

[EllaBlue]

Hi Deserteyes!  I am actually angry FOR you!  I have been through heck beginning 30 years ago BEFORE I finally found a GREAT doctor that diagnosed my Lupus. I was before that time, even thrown OUT OF EMERGENCY ROOMS, being told they were for sick people!!!
OMG!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Do you know even recently while I was waiting for my new Rheumy to come on board (mine retired because of ill health) I saw an endocrinologist because I could NOT STAND my intolerance to the heat and always feeling like I would have this spontaneous combustion!! I swear to God! _HE_ WANTED TO PUT ME ON AN ANTIDEPRESSANT BECAUSE _HE_ DECIDED I MUST BE ANXIOUS BECAUSE _HE_ HAD NO ANSWERS AND COULD NOT ADMIT THAT.!!!!!!!!!!!!!!!!!!!

FINALLY MY NEW RHEUMY IS ON BOARD AND EXPLAINED THINGS TO THE TEE FOR ME AND THE WONDERFUL FOLKS HERE AT THIS FORUM KEPT ME GOING.!!!

IF you don't do anything BUT this, please, please NEVER GIVE UP ON YOURSELF! Never EVER blame your health on "anxiety." Sure, anxiety can make matters worse. Sure it can exaccerbate our symptoms and it is not wonder we have anxiety with all that we deal with. BUT getting to the root of the problem can be a matter of life and death and at the very least, quality of life.

I just am so sorry for the ignorance that still exists out there and YES even within the medical professionals!!!

Please again, do NOT give up. WE are HERE FOR YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Eventually you will get help. I am just so sorry for the "journey" sometimes. It is not without pain, and or fear, that is for sure.
(((Hugs))))
Hope you will stick with us, and WELCOME TO OUR FAMILY HERE!~!!

EllaBlue

[Katybarstool]

If you contact the British Sjogren's Syndrome Association (BSSA) helpline, they will give you details of the best doctors. 0121 478 1133.

Kathyx

[Deserteyes]

Hi all,

I am so grateful to have found you all here... I already feel so welcome and supported, thank you, sincerely.

I am going to have to get used to how quickly people reply and make sure I come back sooner to respond, so sorry for not noticing I had more replies...

Thanks so much Ella, that was such a lovely message, it is so frustrating isn't it?  You know they are telling you you are anxious, and if you disagree or get upset - well that confirms you are anxious, overwrought, highly strung!

Thanks Kathy, that number is very helpful, I will give them a call on Monday afternoon and let you know how I get on.

Thanks again, and have a lovely weekend,

Leah x

Ps been experiencing mild double vision, so have been going through a bit of a palavah trying to use contact lenses to see if my eyes will marry up and the hospital optician finally agreed that there it would be too dangerous to continue with my exceptionally dry eyes - because when I arrived to have him remove them yesterday, they were completely stuck to my cornea! He had never seen that before and was a bit shocked. He said he would have a chat with the consultant about where to go next.  Hopefully the message will get through to my ophthalmologist that this is not just a "bit of dryness" and get me some help!