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all this talk of blood work has me wondering

Started by artistangie, July 21, 2012, 06:47:03 PM

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artistangie

July 21, 2012, 06:47:03 PM
thanks for participating!

gold55

#2
July 21, 2012, 11:39:08 PM
Artist, I did "other" because I do have positive bloodwork but I don't clinically present with all the symptoms of SJS so......they aren't committing to anything except "arthralgias".
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

artistangie

#3
July 22, 2012, 07:14:52 AM Last Edit: July 22, 2012, 07:18:39 AM by artistangie
Another word for me to google...  :)

ok I googled and i see its really more of the same, different word, sigh, how many words do you think they can come up with for us?

artistangie

#6
July 24, 2012, 03:57:06 AM
one last bump to see if anyone eles wants to vote... the results thus far are interesting to me and pretty much what i expected

matildamillicent

#7
July 24, 2012, 04:15:27 AM
This is really interesting. Thanks for postings.

It's a relief to see I'm not alone in the "negative blood work and doc says no Sjogrens DX but gives you meds for Sjogrens" group!

artistangie

#8
July 24, 2012, 04:17:44 AM Last Edit: July 24, 2012, 04:21:30 AM by artistangie
thats my group M and why I did this, i just knew i wasnt the only one and had to see!
And my doc said to me that he know it's sjogrens !

seren

#9
July 24, 2012, 01:18:05 PM

I had a positive ANA 1:160 speckled pattern and a positive lip biopsy with mild-moderate infiltration of the salivary glands.  My SSA/SSB were negative as were all other markers/bloods.

Thanks God for the pos. lip biospy as I would never have gotten the dx altho I had all the symptoms.  Here in the UK at least where I live (Wales) I find the GP's and Consultants (altho have not seen a Rheumatologist in 2 yrs) quite dismissive and lacking in knowledge...not impressed one bit by the NHS!!! 
>:(

jazzlover

#11
July 24, 2012, 06:15:58 PM
How do I "view results"?? I clicked on it and nothing happened.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

artistangie

#12
July 25, 2012, 05:58:22 PM
If you vote you should see the results... Idk other than that :(

Reanne

#13
July 25, 2012, 07:27:14 PM
As far as I know my only positive blood work is the ANA.  I will ask for a copy next time I see the rheumy.  She remarked on how dry my mouth and eyes were the very first time she saw me.  It was "normal" for me.  My skin is dry and I have joint/muscle pain most of the time.

malew/sjogrens

#14
July 25, 2012, 11:06:57 PM
Other: Positive ANA and SSA ro and positive lip biopsy.
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