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Rubbish connective tissue

Started by Katybarstool, April 24, 2012, 12:48:29 PM

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Katybarstool

Thanks Mebog

... and good luck for the 7.

Kathyx

Diane63

Hi, Katy!  I'm new to the Forum, and just read your messages and replies.  Today is the 18th, so you've had your surgery by now and I hope all went well.  I feel very validated by what your doctor said.  I had a uterine prolapse about 10 years ago and had a hysterectomy.  Then I had a bladder/bowel prolapse and surgery to fix.  Then about 8 months later the bladder prolapsed again!  My excellent gyn used mesh the next time.  That was about 3 yrs ago and now I am having it again.  So it's Sjogren's!  It's kind of a relief to know finally.  Thanks for sharing so candidly.  I'll tell my doc and maybe we can figure out a better approach to fixing what's wrong.  Let us know how you are doing.  Sorry you've had to go through this. :)

harrigan

Hi Kathy - just wanted to say I'm thinking of you as you recover.  I hope you are as comfortable as possible and are getting sufficient pain relief.  I'm sure you must have wanted to stamp your feet and shout "It's not fair!" - such a lot to have to go through all over again.

Hoping that this time it's for good and you get your atrength back quickly.  At least you are not missing any beautiful weather while you are laid up! 

Sending love  :)  Ailsa xx
Female, 54
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: abatacept, Methotrexate injections , Folic Acid, Amitriptyline, Ozepramole, Tramacet, Glandosane & Viscotears.

Katybarstool

Diane, thank you for validating my experience too - you are one of the few ladies I know who has Sjogren's and has had repeat prolapses. So far, I've had surgeries for: rectal mucosal prolapse, intussusception, rectocele, cystocele and this last one was a combination of enterocele and rectocele. I had mesh for the intussusception, but not for the others. I'm praying that everything stays where it should in future.

My surgery went well on Wednesday: the surgeon said she hadn't revised such a long perineal scar before, but the underlying muscle looked good, so that should help prevent further prolapses. The botox has been successful, and I can now have regular bowel movements. I'm sore, and very tired, but glad to be done. I'm to rest as much as possible, and am not allowed to work for six weeks, so hoping for some sunshine to relax in.

Thank you for all your kind words, and positive messages.

God bless.
Kathyx

Cricket

So glad your surgery went well, now rest as you are suppose to.  Sending a hug for you!
Cricket
Female 64 yrs. old with:~Lymphoma ~SJS~, Fibro, Neuropathy, Spinal  Stenosis, Degenerative Discs, Shingles Arthritis, Hypo-thyroid.
Rituxan, Synthroid, Lopressor, Vasotec, Zantac, Zyrtec, evoxac, Lexapro, Neurotin, Ambien, Zanaflex, Voltarm, Vicodin, fish oil, Centrum vit.,  CoQ10, vit. D, Miralax

Dolly Dimples

  Hi Kathy, it seems I am rather late in coming  into your thread, so just want to say how pleased I am that you have had the op, and are now recovering, without any set backs I pray!   I am still managing my 2nd prolapse ok, but one thing is I can pee for Britain!! which I am pretty sure is down to the prolapse.  I hope I can live it out now , as at 76 think an op would kill me first !  Good luck and health to you, Hugs Dolly x

Katybarstool

Thanks Ladies

I know I have to riest, I just can't risk any more prolapses, so I'm doing as I'm told.

Dolly, do you think a ring pessary might help with your prolapse? That could be done as an outpatient.

Hugs
Kathyx