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antidote for steroid withdrawal pain?

Started by wendyoh, June 21, 2012, 01:59:22 PM

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wendyoh

June 21, 2012, 01:59:22 PM
what a nightmare, I was using steroid eyedrops per opthamologist and at first made my eyes and body feel better but then migraines got triggered and my primary doc who knows how sensitive fibro people are said I could just stop, had been using almost a week 3xday, i tapered to one drop a day for couple but he said fine to go cold turkey, he said steroids can damage cornea lining actually.
anyway, i wanted to go off anyway cus it was triggering pain problems, but wow stopping them has made an even worse pain problem...and I am scheduled to go on a trip soon, do not want to be in major pain mode.

any remedies for stopping steroids? if its hard for you to picture getting effected by the drops pretend the question is for going off prednison, any known folk remedies or mainstream medical ones to quiet the body?
sjogrens, cervical stenosis, bulging cervical discs 4 level, DDS, DJD, emerging vertigo, cfs, fms, gerd, plantar fascitis, corneal erosion, some other stuff :)
not trained in medical field so just share my experience and opinions as a consumer and lay researcher trying to get more well-ness

MissyLouWho?

#1
June 21, 2012, 04:59:25 PM
I don't know but I hope someone comes along soon with some advice.  (((Hugs)))

eyeamdry

#2
June 21, 2012, 10:18:36 PM
Wendy, are you using otc artificial tears without preservative also?  If not, perhaps using some regular otc drops could help you off the steroid drops, or maybe you need to talk to the doc.  I can't imagine withdrawal from steroid drops, sounds painful.  Hope you get help.  One more thing for a quick temporary fix is to use a cold washcloth over your eyes, or get a blue gel icepack and wrap in a clean cloth and hold over your eyes.  Lucy

quietdynamics

#3
June 22, 2012, 10:14:35 AM


I would call the opthamologist.
We do not know why you think it is " steroid withdrawal pain?"
Sometimes my eyes flare,burning,etc.
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

jazzlover

#4
June 22, 2012, 03:21:25 PM
My only advice would be to taper off slowly.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

wendyoh

#5
June 22, 2012, 06:16:57 PM
hey thanks you guys for input

the reasons I attribute to the steroid eye drops tying into getting off kilter is because I was somewhat stabilized on gabapentin before I started them and now that I went on the eyedrops and off of them have had some of the worst headaches in a few months, cant think of any other triggers that are new. I also started getting insomnia that was clearing up on the gabapentin.

I think it may also have been the combo of gaba with flurometholone, my body may have been having hard time breaking them down together.
sjogrens, cervical stenosis, bulging cervical discs 4 level, DDS, DJD, emerging vertigo, cfs, fms, gerd, plantar fascitis, corneal erosion, some other stuff :)
not trained in medical field so just share my experience and opinions as a consumer and lay researcher trying to get more well-ness
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