ENT visit "not so good"

[eye2dry]

hello all.

AAACGRL= The lump itself doesnot hurt except when pressed but now I am notcing under my left jawline an ache. Did your "lump" hurt,

I am confused about pain in general pertaining to our glands.. is it a good sign it hurts or not a good sign?


Irish----Believe me I will be keeping my CT appt next tuesday and listen closely to what he has to say after it is read. Did your submandibular gland hurt? why did they remove it? just to bx or b/c it hurt..wasn't working,etc..

did they biopsy first...needle aspiration?


crymeariver---did they remove your  lacrimal gland or just tx with chemo? as to your parotid glands did they needle bx it or just plain remove it?


To All........Maybe I would not worry so much if my father hadn't died of parotid cancer, or my increase risk of lymphoma d/t my AI issues and lastly having that squamous cell cancer removed so close to this bump in march.

seems like there is too much negative coincidence.

it will be a tough weekend to wait out.

If I called the derm that removed the squamous...do you think he'd be helpful or hang up and start covering tracks so to speak?


eye2dry

[AAACGRL]

I had some pain. As the months wore on it got worse and I didn't want to be on every antibiotic out there for months and build up a resistance when the antibiotics were clearly not working to start with. But at the start it wasn't really painful. Mine turned out to be so inflamed it was like it scarred up and was useless.

Sorry you are having to wait on all this. I hope you get some answers soon. Once I had a whole body ct scan with contrast as my wbc was always up and I was running fevers in addition to high inflammatory rates. My Rheumy wanted to rule out like colon cancer/thyroid, ect. Well I went in and half way through the scan the radiologist came out and asked ME for my Rheumy's CELL NUMBER. I was scared-to-death. Then the tech comes out and says they found something and I need a lot more testing. So after an appointment with six hours of waiting, then ultrasound, then waiting then other tests it turned out to be ....nothing. So I hope yours will be benign and all will get back to as normal as it can get.  And I'm very sorry to hear about your father.

[Daisy1234]

Eye2Dry:

The CT scan on Tuesday will go along way in determining what the next step will be or not.  So I would suggest at this point to just concentrate on that and tackle these events one at a time.  CT Scans before biopsies are the way most of these things go.  Just so you know, I had an enlarged lymph node in front of my right ear for about 8 or so months about 4 or 5 years ago and my ENT also sent me for a CT scan and talked to me about surgical removal and it turned out that it was determined that it was nothing other than a reactive node which is harmless in most cases.  So no additional action was taken.   Also, the lymphoma I have now is NOT anywhere near or in my parotid glands at all so that node was truly just a reactive one.

Yes, this can be a scary time, but if you can really try to not let yourself focus on what iffing, which can be very hard and instead try to deal with each thing in one single step, I find it helps alot.  So for now, let's just concentrate on the CT scan and what the results will be.  So, in order to do that, when you report for your scan, find out how long it will take to get the results to your ENT and I personally always ask that a copy of the CT Scan gets sent to my family dr as well. 

Additionally, I usually ask my family dr's receptionist to give me a copy of the CT scan report so I can go over it in detail before I get in to see the specialist so that I'm armed with all of the questions I want to ask when  I get in to see him.  You can always post questions here as well as doing your own searches.  The Sjogren's family here is ready and willing to help you, as am I. 

Take care of you right now, let the things in life you enjoy fill you up, don't let this disease steal that away from you.

Hugs,
Daisy

[eye2dry]

Daisy123=

Thank you for your post......it was nice and thoughtful of you to give me a bit of your personal medical info of your similar situation.

I am trying real hard to "let it go" and enjoy my weekend.

May we all continue to do well...........it is so wonderful to be able to lean on each other here.


eye2dry

[Patty]

You have already gotten lots of good advice, but I wanted to say I am thinking of you. Try to keep busy and to get some rest. I remember when a doctor told me he there was a 50% chance I had cancer and then I had to wait a month for the biopsy. It was terrible. No cancer. Now why did he even say that? Maybe 50% chance isn't so bad but it freaked me out and did me no good. Praying yours is "nothing" as well and hope you have a good weekend.