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What did they do to me?

Started by Sven, May 23, 2012, 02:47:48 PM

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DragonflyC

I completely agree with Irish. Dry mouth is just one SJS symptom. If you have others, I'd think that the diagnosis should still be on the table as a possibility unless they've found evidence for something else or additional evidence against Sjogren's. Everyone's case is different, and not everyone with Sjogren's has all of the "hallmark symptoms."

For me, dry mouth was the last symptom to show up--after dry eye, after lung issues, after fatigue and joint pain. Well after, in fact. Even now my salivary glands work and would probably respond to the citrus water. And that's coming from someone with positive blood work and fairly firm diagnosis!

A lot of doctors have strange ideas about Sjogren's (someone here posted once that her doctor said she couldn't have it because her skin wasn't like leather!). If you think your doctor is open to being educated, you might want to bring in some information from the Sjogren's Syndrome Foundation (such as this page: http://www.sjogrens.org/home/about-sjogrens-syndrome/diagnosis). If not, you might want to consider another doctor if that's possible, and if it's not, you might want to talk to your general practitioner to see if he/she can help you.