Joint Pain

[Cindy]

I have a question. How joint pain feels like with sjogrens? I ask this because right now I have pain in my thumb finger and is hard to type or hold things. Is this normal for sjogrens?

[MarkP_1972]

The middle finger on my right hand stays extremely sore all the time, don't know why the rest of them are'nt as bad...I don't know.
As far as everything thing else:just extremely achy, throbbing, numbness or very tingly pain. trying to do something, like swinging a hammer bothers all joints involved to the point of failure and having to stop due to pain....

[cremer]

I sometimes loose my grip in my left hand, it tingles like pins and needles and is pretty numb from time to time.

[dainbramage]

That sounds like neuropathy, one of the symptoms of SJS.  It started with my toes, since I stand 12hours a day at work, I thought that was the problem.  I changed shoes and I complained to my co-workers.  Finally, couple of tips of my fingers were numb.  That scared me because I use my tips of my fingers to feel arterial pulses and stick and put in lines in premature babies.  If I lost the feeling in my fingers, I could lose my job.  When I got diagnosed years ago, my rheumy told my plaquenil and cymbalta will help.  Guess what, it took a while but the feeling is back.  I do have elbow nerve problems once in a while so now rheumy is looking into RA.   Oh how lovely more drugs

[mshistory]

In my knees, it's both sharp pains and dull aching pains and the pain radiates out to the muscles. The pain in my ankles and wrists tends to be sharp pains. Prior to starting Plaquenil, my fingers used to swell every morning too and I couldn't bend them properly to type or grab things for almost an hour each morning.

[dainbramage]

mshistory,
me too. My fingers swell so bad in the mornings I could not grip things.  Now I am dealing with elbow pain too.  Once in a while I have swelling, usually after working a lot.

[cipsta]

My joint pain can range from a dull ache to very sharp pain. Mostly it is a dull ache. Both of my index fingers are the worst. I also get tendon pain in my fingers too, especially if I have overdone it or use my fingers for too long.

I can no longer carry heavy grocery bags because they make my joints cease up and hurt as well as the tendons to hurt really bad.

I also get joint pain in my toes. Which is really achy.

[angels04]

OMG! yes!!! thank you all for responding to this question. I have also wondered what everyones pain felt like. I agree with all of you on how you describe your pain. I was thinking it was in my head and that it wasnt related..but the way you all describe it sounds exactly like me..the thumb on my right hand hurts most of the time. My shoulders,elbows,wrists and knees will hurt randomly with either a dull ache or sharp pains that come and go and sometimes stay. It also feels as though my bones ache...
Glad to know Im not totally nuts 

[Iris]

My thumb has been hurting for 3 days now.. It's not even my dominant thumb either.. It's my left one which is the side my tremor is worse on so I don't use it as much.. It's the bottom joint and aches all the time.. If I forget and move it or try to pick something up I have a sharp pain in that joint..  It's always something..   

[gold55]

When I had that bad flare and my fingers and toes hurt it was more like a burning pain so I figured that was neuropathy.  A lot of it has resolved but it's taken 9 months.

[Doxie]

My mom asks me this same question all the time. I think she might have Sjogrens, but she is so overwhelmed with her heart condition that she doesn't do anything about possible Sjogrens.

When she gets a lot of joint pain she starts asking me what my Sjogrens joint pain is like.  It throws me for a loop every time she asks me. I'm not sure what to tell her.  I don't what pain is Sjs, and what pain is osteoarthritis.  All I know is that my Sjs seems to make my Osteo flare up.

All my aches and pains and joints have been much worse since I've had Sjs.  The doctor says he never sees swelling in my joints though they sometimes feel like they are swollen. The neuropathy doesn't help with that either.

I guess I should have my mom read this thread!

[gold55]

I agree with Doxie.....most or all of my small aches and pains became worse with SJS.  I think "soreness" is a good word to describe the pain whether it be in joints or muscles and tendons.  Definitely an inflamed feeling even if nothing is swollen.