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New to diagnosis-plugs in my eyes

Started by drybrook, March 04, 2012, 02:10:31 PM

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drybrook

Greetings All,

Been so miserable with severe, severe dryness for more months than I am willing to count. Cornea's stripped, sores in my mouth. Obviously I knew something was wrong.

I was diagnosed officially with Sjogren's on January 31, 2012. So much has happened since then, February went rushing by with a lot of testing and visits to various doctors. I had temporary plugs put in my eyes 2 1/2 weeks ago and permanent plugs put in this past Friday. AMAZING! Once in a while I actually have a tiny bit of moisture that collects in the corners of my eyes. The Salagen has kicked in and helps with moisture in my mouth. Finally, a bit of relief from the horrible dryness.

Happy Dancin',

Lona

slccom

I love my eye plugs, too. Look into Plaquinel, too. It makes a difference as well with energy. And Biotene.

Hugs, Sharon

ohiolady

Treatment does help, doesn't it?  I remember, in the beginning, having sores and a huge ulcer in my mouth because I was so severely dry.  My eyes are  0 and 2 on the Schirmers and I was just miserable.  With treatment of Evoxac, fish oil and Restasis, the dryness is much better and bearable.  My motto is rest, don't stress and rest some more.  I think it helps more than anything.  I, also, feel the sooner we accept the new normal the easier it becomes.

Take care.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

drybrook

Yes, I am thankful for treatment I have received and the doctor's that work WITH me.

My mouth was so dry it was like I was licking a chalk board and then it was like licking concrete. I drink water, water, water, water. So thankful for the Salagen and now, the plugs. I also have Raynaud's ... thankful for fun wool socks and my electric blanket...oh, and gloves.

I get results from all the blood tests next week. I feel like I am on the edge of my seat waiting for the results.

Lona