I'm going to be meeting other women with Sjogrens

[Carebear]

Good point, Cheryl.  I wonder if some are already members? 

[A66eyroad]

Here's how to print out Sjogrens World biz cards:  https://sjogrensworld.org/index.php?topic=2319.0

[valene2009]

how do we find out what parts of the country /countries we live in? some people dont post that? it would be nice if there was someone somewhat close by???

[slccom]

Your doctor can tell the other patients about you and let them contact you, though. There are no privacy issues there. Sharon

[Carebear]

Well, we met, and they were such lovely women!    We each shared our "war stories", and it was remarkable how much we had it common.  Two of us even share the same rheumotologist.

We plan to meet again in a few months.  And there will likely be more joining us at that time as well.

It's so nice not to feel so alone. 

[Bucky]

Carebear - sounds like you had a good time meeting local fellow Sjoggies.   

I truly believe that no one can understand what a person is going through unless they themselves are experiencing the same thing, or have been there.  Nothing bonds a person more than a shared experience.

You'll have to update us the next time you all meet up.

Bucky

[cargillwitch]

I guess I am lucky in this regard- my mother has Sjogren's as well- don't have to look far to find someone who truly understands. Plus she has had it for many years and all I need to do is phone and she has suggestions. I hate that we both suffer but it eases my mind to know I have a sympathetic( and knowledgeable) person to talk with.