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Newbie - Sweets Taste Salty?

Started by Mcspire, February 10, 2012, 08:01:19 AM

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Mcspire

New to this board, but have been reading for a couple weeks and got great insight.  Thanks to all of you for sharing information.

I cannot find this is a side effect from the generic Plaquenil or Salagen, but suddenly I have a horrid salty taste in my mouth?  Is this part of Sjogren's?  This is particulary noticible with sweets.  A cup of cocoa tasted like warm saltwater.  Kind of sacreligious to mess with a gal's chocolate.

Primary Sjogren's, diagnosed January 2012
ssa and ssb >8,
ANA Titer IFA 1:1280, Speckled
Attempting generic Plaquenil and Evoxac
Also diagnosed with Trigeminal Neuralgia,
tried Tegretol, Gabapentin and Symbalta, but can't function to work so taking nothing right now, but pain is rare.

Joe S.

Welcome McSpire. I hope the meds work for you. There are alternatives and supplements. The sweet as salt may require a specialist.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

A66eyroad

Wow, that's a new one on me!   :o

I've had the taste of salt or the taste of copper pennies in my mouth before. And I don't eat sweets anymore because they taste so cloying and overpowering.  But never something sweet tasting salty.

Sounds like you might need to mention that to your rheumy or G.P. next time you're being seen.
Female, 61
Sjogrens, UCTD, and subacute cutaneous lupus. Flu-like symptoms, mouth & nasal ulcers, itchy rash, high cholesterol, headache, earache, tinnitis, dizziness. Hangover-like nausea, especially in the a.m.
Plaquenil, Atabrine, DHEA, Aleve, Evoxac, Allegra/Benedryl, esomeprazole.

Luna

I agree with the other two posts. Please let us know what you find out..

Luna

Jellyb

Hi Mcspire,
I wonder if it something is going on with your sinuses. Sometimes that can effect how you taste. Very strange. I hope you get it figured out, we cant have hot chocolate taste like salt water, thats just wrong!

Bucky

Quote from: Mcspire on February 10, 2012, 08:01:19 AM
A cup of cocoa tasted like warm saltwater.

Hi Mcspire - welcome!

You don't by chance have a water softener that needs salt added to it, do you?  Some times we'll get the "salty" taste from our tap water if salt is needed for our water softener.

Other than that, I've never heard of that before.  I agree - salty chocolate is just not right!  ;)

If there is a particular subject you are interested in, just put that word(s) in the search box to the top right of this page and it will take you to previous threads about it.

I hope you find this site helpful to you as you begin your Sjogren's journey.

Bucky
Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

vtmommy

I didn't think it was a Sjogren's thing, but lo and behold:

from:  http://www.riversideonline.com/health_reference/Ear-Nose-Throat/AN01411.cfm

"Taste changes are rarely a sign of a serious underlying problem. However, they are annoying and can impair your enjoyment of food. A persistent salty taste in the mouth can have many possible causes, including:

- Dehydration. This may be due to inadequate fluid intake or excessive fluid loss. Review your diet. Excessive intake of alcohol or caffeine can cause fluid loss, resulting in dehydration, which can make saliva saltier.
-    Side effect of certain medications, such as anti-thyroid medications and chemotherapy drugs.
-    Salivary gland diseases, such as Sjogren's syndrome or bacterial infection of the salivary glands (sialadenitis).
-    Post-nasal drainage, such as with a sinus infection (sinusitis) or allergies.

Rarely, a salty taste in the mouth is due to a nutritional deficiency, endocrine disorder or neurological disorder, such as epilepsy or migraine."

Sadie963

When I was taking higher doses of Prednisone, foods began to taste much saltier to me esp. foods that are not normally salty.

My rheumie dr. said it could be a side effect of taking larger amts of steroids. I was taking Prednisone due to a bad flare. 

The saltiness went away when my Prednisone was tapered to lower amts.

Mcspire

Thanks, everyone, for the responses.  Not sure how to respond inividually, so in general, here goes.

No water softener, nor prednisone.  That was interesting about the infection of the salivary gland, though.  I will definitely mention at my next appointment which is on the 27th.  That is like a month in on the meds I started.  After that, how often do you usually see your rheumatologist?  Hoping just when symptoms are worse or meds don't work?

Great message board!!
Primary Sjogren's, diagnosed January 2012
ssa and ssb >8,
ANA Titer IFA 1:1280, Speckled
Attempting generic Plaquenil and Evoxac
Also diagnosed with Trigeminal Neuralgia,
tried Tegretol, Gabapentin and Symbalta, but can't function to work so taking nothing right now, but pain is rare.

Mcspire

Another weird question, why does everything seem worse on the left?  lots of posts mention symptoms on the left, which is my worst side as well.  Headaches start on left, left eye is always dryer, left knee is the the worst of the two, etc.

Strange.
Primary Sjogren's, diagnosed January 2012
ssa and ssb >8,
ANA Titer IFA 1:1280, Speckled
Attempting generic Plaquenil and Evoxac
Also diagnosed with Trigeminal Neuralgia,
tried Tegretol, Gabapentin and Symbalta, but can't function to work so taking nothing right now, but pain is rare.

gurs

due to my Sjogrens...I can hardly taste anything anymore...I load my foods up with salt, which is ok for me since Im sodium deficient(prob due to POTS).. and have very low BP...wish I had some tastbuds left.....If i try to eat something with more spices, ends up hurting my tummy. Ive been on 20mg of pred/medrol for years now.

My left side is also the worst for everything?  uhmmmm..ive heard with before with many of us? interesting?

gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

Jenny

There might be something to that. I have been complaining lately that every time we go out to eat my food is way too salty and I can't eat it. My husband or someone else will take a bite and love it. I thought it was just me, but probably Sjogrens related like most of my other problems.
65 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries