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Needing to vent to someone

Started by KatieB, January 31, 2012, 04:23:28 PM

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slccom

No, I never heard of that. I just looked it up -- how wonderful! I'm going to share this with my friends. http://www.lyricsfreak.com/f/fred+small/talking+wheelchair+blues_20318682.html

soycoffee

January makes me blue; then February comes along and blues pile on! So many reasons that life sucks -- until April/May/June. So we hang in there.

I died once, when I was 19, from anaphylactic shock -- being given a shot of x-ray contrast dye that killed me. They don't make that stuff any more.

I didn't get hit by a truck or a freight train, but I did get hit by a car that put me in a coma once.

They were fortunate experiences, fortunate in that they do put things in perspective. I am not responsible for the events; I am responsible for how I deal with them, how I take care of myself.

And if this is an annoying post, print it out, crumple it up, and throw it across the room. Of course it doesn't say anything about being blue right now. But it's a good time of year to cut each other some slack, let the kids take a "me" day away from school (even if Mommy is the teacher), trade exotic fantasies with your husband, without getting into heavy issues between you,

Yeah, yeah, I can hear you saying "I wish!" But that's the idea -- spend a little time wishing, even wishing for impossible things.

For what it's worth,
Soycoffee

Suzie

Soycoffee - GREAT POST!

I needed to hear that today.

:)

KatieB

  Thanks a lot  to everyone who responded. The last few days have been busy ones so I'm just checking back in. We had a sleep over party for the boys, teenage boys everywhere! Then some friends came over for the super bowl on Sunday, and Monday was for sleeping and recovering from the weekend.

  I found a great book by Joanna Baumer Permut called "Making Friends with the Wolf". It's about a woman with lupus, and about how both she and her family learned to deal with her chronic condition. That one and another book called " Living With It" by Suzy Szasz have been really helpful. 

  Thanks again,  it really means a lot that so many people took time to respond, and that song was great. Have you ever read "Welcome To Holland "? It's a poem about acceptance that was written by a Emily Perl Kingsley, about having a child with a disability, but it's very relevant for any kind of unexpected, life rearranging experience. I have in my desk drawer and it's been something I've pulled out over and over through the years.

  Take care, All
Sjogren's, essential tremor, gerd, stage 3 kidney disease, h63d homozygous - elevated iron
Meds- plaquenil 400mg, predisone 10mg, sumatriptan succinate 100mg, famotidine 40mg, metoprolol tartrate 50mg, pantoprazole 80mg, methotrexate injections, various eye-drops and various vitamins

sunkissed64

Katie,

This is the place to come to feel normal, where others know EXACTLY what you're going through and care. Everyone has their moments of feeling overwhelmed especially since Sjogrens effects us in so many varied ways that often pile up. Always remember you are not alone and that we are all just a posting away.

HUGS

Sunny

KatieB

  Thanks again, this is such a great group. :)

   Oh, and I finally got to watch MommaMia today. Yes Chickpea, I ALWAYS cry when she's helping her daughter get ready for the wedding! I love the song they sing. If I have to have a couch day at least I can imagine I'm on a lovely Greek island....
Sjogren's, essential tremor, gerd, stage 3 kidney disease, h63d homozygous - elevated iron
Meds- plaquenil 400mg, predisone 10mg, sumatriptan succinate 100mg, famotidine 40mg, metoprolol tartrate 50mg, pantoprazole 80mg, methotrexate injections, various eye-drops and various vitamins