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I'll tell you what I am thankful for

Started by eye2dry, January 07, 2012, 04:07:03 PM

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eye2dry

January 07, 2012, 04:07:03 PM
Hello all SS viewers.
A little bit ago my husband and I were sitting and discussing this SS thing. Of course, I feel more needs to be done about it,etc...
However, a thought occured to me...what would my life with SS 100 years ago be like? The thought of no medications, no super duper eye drops or moisture chambers, Biotene products, humidifiers no sjogren forum and so forth. What misery it would be. No rheumatologist, few GP's.
So... I am very thankful that if I've got to have this SS affliction, at least I'm suffering with it in 2012.
I am lucky in a way,
now pass me my eyedrops.

KellyG999

#1
January 07, 2012, 04:26:10 PM
Eye2Dry,

That's an excellent point. I think of these things, too. My ancestors were hearty people who came to the US on long, unpleasant boat trips to Ellis Island. They made it through the depression. I cant make it an hour without drops, water. meds and a bathroom. Still, I am fortunate to have these items, and even more fortunate that God is always with me, my family puts up with me, and I have a job that (most days) I consider to be fun and exciting.

Thanks for the reminder!
;D
KellyG

Jorja

#2
January 07, 2012, 04:47:37 PM
I am thankful that if I have to have SJS . . . . that I have it in this day and age of modern medicines, too.

I've said for years how very, very thankful I was that I didn't have the severe asthma I suffer from now as a child.  That was back in the day when we didn't have air conditioners in the house or car/Asthma Specialists/good medicines or nebulizers for the home and car. 

All in all, I complain a lot but God has truly blessed me and I am thankful.

Blessings,
Jorja

gold55

#3
January 07, 2012, 05:22:43 PM
I feel very lucky too.  Thank you dear Lord!
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

Woolygimp

#4
January 07, 2012, 05:41:39 PM
Well chances are most of us would not be sick 100 years ago.

Autoimmunity is really a recent epidemic.  Mayo clinic had blood from 50 years ago and they tested them for IGG celiac antibodies and compared them to blood draws from modern patients and they found that celiac disease is 5-7x more common today than it was just 50 years ago.

That proves that it's not just better diagnostic equipment, people are actually getting sicker at much higher rates than they use to.  Autoimmunity did exist way back when, but it was regarded as a very, very rare disease.

So... it's something in our modern society or maybe a combination of things that are really pushing us over the edge. 

Luna

#5
January 07, 2012, 06:09:11 PM
Im thankful that I finally have a name and an explanation. I am thankful for my families support and I am thankful for this site.

Scottietottie

#6
January 08, 2012, 09:00:22 AM
Hi Eye2Dry  :)

Very good point. I'm also exceedingly glad that I live WHERE I do. Neber mind 100 years ago there must be thousands of sufferers across the world with little or no access to health care. It's a sad fact that even in this day and age 50% of the world's population go to bed hungry every day.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

Madison Granny

#7
January 08, 2012, 12:00:42 PM
I thankful that I finally know what I have.  I'm doubly thankful that I am the one in the family that has this and not my daughter-in-law or 9 year old granddaughter.  I hope that they never have to experience this.  All of my family have been very supportive through this now that they know what's happening. 
Primary SJS, dRTA, Osteroporis, OAB, stage 3 kidney disease, hypothyroid and high blood pressure.  Medicine I take are plaquenil, bicarb, prolia, synthroid, toprol and amolipine, citracal and vitamin D.  I use Arex and Azasite and Prolia.  I also have Reynaud's and osteoarthris of the toes

Piebird

#8
January 16, 2012, 11:49:52 PM
I am the first to complain about everything!

But just for a moment, I will put that aside, and say...

I am grateful that, thanks to Sjogeren's I no longer drool in my sleep.

For the last 10 years I have slept next to my husband and he has never seen me drool. Thank you Sjogren's. My first husband was not that lucky :?

valene2009

#9
January 17, 2012, 07:05:33 AM
this is a very nice post..although i wish those eye drops would do a lot more..some days are unbearable. but at least in the future there will be more advances..anyone see the latest Restasis commercial?? at least it doesnt have that Allison Doctor.. lol..
no really-you are so right-at least we have some things to help and some things to take the edge off..and i really trully believe in time better treatments are on their way!

Narablueeyes

#10
January 17, 2012, 08:51:57 AM
Another person thankful and Sjogren's gets some much needed attention.

http://www.dnj.com/article/20120115/LIFESTYLE/201150304

Doxie

#11
January 17, 2012, 10:51:12 AM
I'm very grateful too!

I'm so thankful to have a diagnosis, and have the Internet and resources and this forum to help me on this Sjogrens journey.

Thankgoodness for gum - which I used to hate -  for it helps coat the mouth!

I was once in a foreign country where the water was turned off for a while.  Boy oh boy - water, water, water is wonderful!

I could go on and on . . .   ;)
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