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Weve Arrived guys...Venus Williams article/Sjogrens in New People Magazine

Started by gurs, December 31, 2011, 10:25:10 AM

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gurs

She is pretty young as well....my SS was pretty manageable until I hit the 30's, then every year after that, things grew progressively worse.
Now, I almost 48 and things are a nightmare, and Im guessing hormones play a huge part in all this....for me anyways.

I'm sure she is seeing the top rheumies too...I wish they would get into what medications etc they are on or have tried. Most of them dont
do that though?

Lets hope she can bring some awareness to this and will champion for some research etc.

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

stephL

Quote from: gurs on January 03, 2012, 04:07:54 AM
I'm sure she is seeing the top rheumies too...

Gurs, I'm sure she must have good specialists now. But from what I've read, Venus has done her time on the Sjogrens diagnostic merry-go-round just like the rest of us.
"Unlike weakness, fatigue can be alleviated by periods of rest." -Wikipedia: Fatigue (medical)

valene2009

i love that idea Lucy! ha ha.. that would be great. well i am trying a "diet".. the only carb besides veggies and fruits i have had is oatmeal and i cannot stand the taste of it anymore. i dont know.. im basically eating fruits veggies, sweet potatoes and all kinds of good fish-unbreaded or fried of course.i even stopped eating mixed nuts out of the can cause i noticed they has cottonseed oil in them.. i bought some raw almonds--not as tasty at all. i eat an occasional egg and egg whites a lot..

time will tell. i am hoping i can do this for about 4 months.. i know that is what they say you have to do.. i guess i am kind of eating "raw".. except i have to get more protein then just from beans... i wonder what else she is eating for protein since athletes need more.. i also wonder what we will hear about her in the upcoming months... it would be great if this led to more research on sjogrens (not great for her) but you know