wound up in the ER today

[arina83]

Extremely nauseous and dizzy, swollen feeling in abdomen and legs. Little fever too. Sat around for a while, all blood tests normal. Kidneys and liver normal. Chest xray normal. Suggested I follow up with PCP or rheumy.

Got a call from the rheumy I saw in October. Would like to see me again. But I can't get in until Jan 27. Oh well.

Guess I need to see if I can make an appointment with someone else sooner. But I'm totally exhausted.

[mshistory]

Oh gosh, I'm sorry. I hope you start feeling better soon, and good luck finding a rheumy who can see you soon. Those waits are always so frustrating!

[Narablueeyes]

I'm so sorry Arina!!  Did you ask them to put you on the cancellation list, in case someone cancels? 

[paperdoll]

Hugs Arina!

I'm so sorry to hear you had to go to ER!
Nara has a great idea get on that cancellation list.

I hope you get a good kind doctor who listens!!!

[arina83]

Thanks everyone. Am on cancellation list for both, but with the holidays and my vacation I won't even be around until the end of January anyway.

There is a clinic about an hour away, and I'm going to see if I can get any treatment there. Might have to ask my dad to call, since I do not have the energy.

So frustrating, since I don't feel any better. Tired, but not sleeping well. And my lungs hurt.

[Pisces24]

I have and am taking med for a sinus infection. I also had/have the tightness in my chest area. My dr gave my doxycycline and surprise It helps the tightness in chest & sinuses too. Guess I had some inflamation there.

Oh yeah --- get on the cancellation list. You never know.  And CALL them to see if there has been a cancellation - dont' wait for them to call you. Sometimes the person answering the phone is a nurse and the dr just might be having a  day where he can work you in. You don't know if you don't ask!!

[Narablueeyes]

Oh yeah --- get on the cancellation list. You never know.  And CALL them to see if there has been a cancellation - dont' wait for them to call you. Sometimes the person answering the phone is a nurse and the dr just might be having a  day where he can work you in. You don't know if you don't ask!!

Yes, yes, yes!!!  Keep calling!!

[arina83]

Will call the new PCP on monday...see if I can get in to see the PA sooner than my appointment with the MD. Also call the rheumy, see if she can refer me to another rheumy if rheumy 2 can see me before Jan 1.

If I felt better and wasn't having trouble breathing, plus the fatigue and minor confusion from the fevers, calling would be much easier. From where I am right now, seems like an impossible task (like trying to call Everest w/o oxygen). Maybe will see if my dad can make the calls for me.

[soycoffee]

Almost all my doctors' PAs are wonderful. The sleep medicine PA is a pill, but most are great, have helpful information, and consult the doctor/a doctor if there's need. If your dad can call, do that. If not, spend some time in a steamy bathroom, and then try calling.

Soycoffee

[arina83]

Good news: I see the rheumy on wednesday!

Very happy my prayers have been answered....now to pray for plaquenil!

Off to dentist tomorrow!!!!

[A66eyroad]

Joe S. will tell you to bring an advocate!    He is so smart!

Also, you might print off some information from either this forum or the Sjogren's site. I personally love this page: http://www.sjogrens.org/home/about-sjogrens-syndrome/symptoms
I even used it once to give a speech to my Toastmaster's club.

Good luck tomorrow!

[arina83]

Thanks for the link! Will probably end up going by myself tomorrow, since everyone is busy.

Will go armed with as much information as possible, and a list of symptoms. Write down concerns, etc.