Sass Update

[sass]

I am so sorry that I have not posted as late. I did do an update shortly after surgery, but I noticed it did not post and got so discouraged after losing all that typing, I gave up. My so called Sjogrens is on its own.  After months on Plaquenil I was receiving no relief whatsoever.  I gave it up.  My insurance only pays for a small portion and I cannot afford to continue on a medication that seems to do nothing.  Have had to add yet another blood pressure med to my assortment.  Now it is 3 different ones.  I really don't know what my next move should be.  I return to doc in another week for a recheck.  My twin granddaughter Callie is doing well, though I have not seen her since going home after my week there. Her smile seems to be stiff and rigid in the pictures and her eyes do not flirt and dance with happiness like before surgery. They are coming this week, but I cannot get off of work to spend any time with them.  Meanwhile my 7 yr old grandson is being sent to Texas Children's for testing for Tourette Syndrome. Praying that we get good news. My Dad has moved in with me and has taken several falls had to call ambulance and admit to hospital, now no driving (yay), full time walker and breathing treatments, I had sleep study and was told I never sleep longer than 15 mins. Have severe sleep apnea. Have to go back for second study. My bloo pressure is sky high...200\110 sometimes higher, sometimes lower. Constant pain. Hubbie is having a lot of pain and is taking care of Dad, while I work. Work is horrible as I get chewed out for missing when Dad is in hospital or Callie had surgery. No Mercy there. I used vacation and sick leave. I am about to either have a stroke or explode. But I refuse to be beat down. I trust in God and continue my prayers.....Oh yeah, my daughter is expecting in March. And Son, wife and Twins are moving 3 hours closer. Another answered prayer,  I want to Thank all of you for your support and prayers.  You guys are the best.   sass

[Daisy1234]

Sass dear one,

My heart goes out to you.  So much on your plate no wonder your BP is off the charts.  I will be adding you to my
prayer list once again and am praying that your load will be lightened and you find a way to battle your Sjogrens that won't overwhelm either physically or financially.  You are such a special person to give and give so much to others when your are dealing with so many of your own challenges.

Sending many compassionate hugs your way,

Daisy

[4Kids]

Sass, please hang in there. Take care of you, ok?

Daisy, I pray for you akways. take care of you too!

[sass]

  Daisy,  Ha, you are one to speak of having a lot on her plate and a giving person.  You are such an inspiration  to us all.  You have been thru so much and then add people to your prayer list.  Thank You for being Our Daisy!  Such a special lady you are.  I do appreciate the prayers.  I continue mine for you.     sass

[Meld256]

Sass,

My heart and prayers also go out to you. I think Daisy's post says exactly what I would want to tell you. 

And to you both, you are giving women. Ones I am honored to know, even if it is only here in our forum.  Both of you take care of yourselves.  You are special to all of us.

[Cheryl]

Hugs and prayers for you both, Sass and Daisy
Cheryl