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Never Thirsty

Started by Mudpup, December 08, 2010, 02:15:06 PM

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Mudpup

I'm really sorry If this topic is already posted. I tried keywords but it didn't help.  My problem is this. I have always hated drinking water, which with Sjogren's it just makes the situation worse.  The other problem is I never get thirsty anymore. I make myself drink stuff but I know I am so dehydrated . Right now I feel like a dried out sponge in the middle of a desert.. Anyone else have this problem if so are there any things out there that can make you get your thirst back? I have googled every variation of lack of thirst trying to get a medical name for it so I can find out more. but Nothing. Loads on Thirst but not lack of thirst. it just takes me to dehydration which is the result not the problem.. :-\

Dolly Dimples

  Mudpup, I think that your problem could be
                  that since we SS are so dry all the time we eventually lose our sense of taste at times,
                  Thats the only explanation I can conclude to.

               If one loses sense of taste , its understandable that we can lack taste.
            If I am honest , I would say that I drink purely of habit , rather than by want.
               I'd be interested in any other views on this topic.. Dolly



   
'd be interested in any others view on this

Mudpup

That's interesting, I never thought of that.  My taste buds have stayed intact though, don't have a problem with the senses. You would think because we are always dry and dehydrated we would be forever chugging down a drink because because we are so parched..I just don't get that urge :(

Carebear

Hi Mudpup,

Yes,  I'm the same.  I never feel thirsty...very dry mouth but no thirst sensation.  It was not uncommon for me go all day without drinking anything, until I finally caught on.

I have taught myself to drink lots of fluids first thing in the morning, when taking medications or vitamins, with anything I eat, before I go outdoors in the summer and at bedtime.

I used to have the best "sniffer" in town.  But now I often experience phantom smells or smell nothing at all.

My taste buds go on the blink every so often too.  However this doesn't prevent me from eating.  ::) ::)

I'm assuming that these are all related somehow to Sjogren's?
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

Reanne

I am always thirsty and never go anywhere without a bottle or two of water.

Scottietottie

Hi Mudpup  :)

I drink a lot of tea but I've never liked drinking water. I do, now, quite often sip water but I hold it in my mouth for as long as I can without swallowing. (I do eventually swallow it but I certainly don't drink a lot of it) I don't like sodas or cordials - so I think I'll stick with tea!

Take care - Scottie  :)
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Never do tomorrow what you can put off till the day after tomorrow!

Cheryl

Mudpup,
I don't like water, either.   I rarely actually feel thirsty, although I do drink liquids (just not water.)
Cheryl
Chat co-host on Thursdays at 8:00 Eastern time

beautifulkrissy026

AGREE, hate water, don't like drinking it. I don't drink much at all for that matter. As a result UTI's and Bladder infections. For some reason I'm just not thirsty, but I got dry mouth all the time. That's quite interesting and here I thought I was the only one. Please keep us updated if you find anything out.
Kristine

Shani

I don't feel thirsty a lot too, but I know it's important to stay hydrated.
I guess this is another odd Sjogren thing.

Babs659

I love my 64 oz water bottle.  Take it to work every day and usually drain it dry by the time I leave.

amberjolie1

Hmmm.  I always wondered why I never felt very thirsty through the day, even though supposedly I need more fluids.  It does sound like some Sjogren's thing, since a lot of you have the same thing.  I do like water, so that's good, but I guess I have to remind myself to drink regularly.

Lily

Mudpup,

Can't stand drinking water and rarely feel thirsty, but make up for it by adding a little bit of juice (even orange) to water for some flavor and DRINKING ANYWAY.  In addition, I drink at least several glasses of cranberry/pomegranate juice and a couple of cups of tea throughout the day/evening.

You do not want to get into a serious dehydration, because that'll mean the ER.

Lily

navydad

For some reason my mouth feels dryer (WHILE) drinking water,, I;m not sure if it is or not,, might be the neuropathy,