Muscle Issues

[gphx]

I knew muscular and neuro issues were reasonably common with SS but a paper on muscle issues surprised me.

They found 44% of people with confirmed SS to have myositis, which is inflammation of the muscles.

That's almost half of Sjogies. Amazing.

27% of them fulfilled the criteria for Fibromyalgia.

17% had other forms of myalgia.

http://www.jrheum.com/abstracts/abstracts02/717.html

[Catilee2]

Hi,
That was interesting.
In Jan-Feb 1991 I had a migrating rash with joint inflammation. My PC thought I had a form of Myositis.  The Rhuemie I went to that March
saw me at the end of the episode. He did blood tests- every thing was normal except my sed rate. At that time, he wouldn't put a name on what I had- he suspected a viral infection of some kind. Finally in March of 2000, I was tested again and had an ANA and antibodies to Sjogrens. The values were through the roof.  When I returned to him in April of 2000. He remembered me and said  it was good that the blood work  finally supported an AI. He dx me with primary SS.
Wouldn't it be wonderful if the protein  scientists are investigating leads to more effective treatments and maybe even a cure or prevention. I can keep dreaming!

Catilee 2

[gphx]

Yes that'd be wonderful.

[melo1964]

Thanks for sharing that article.  I have muscle and joint pain without inflammation.  I have only seen my Rheumatologist once and he mentioned FM but said he would wait and see if it went away.  I am so confused about the muscle and joint pain.  I hurt in weird places, such as my rib joints.  They have done x-rays and I do not have arthritis, thus anti-inflammatories don't work.