Quotes from Susan Milstrey's 10/2 SJS Seminar Presentation--SJS Ripple Effect

[DragonflyC]

Quotes from Susan Milstrey Wells's Presentation: "The Sjogren's Ripple Effect"

"Chronic illness violates the unspoken contract in every relationship."

"Each partner carries more weight with a chronic illness."  Some can be measured objectively, but we need to consider effort: w/ chronic illness, life takes more effort.

"Our illness makes us foreign to others."

"Our society is better at dealing with acute illness, like a broken leg, than chronic illness."

"Accept with sincere gratitude anything that others have to offer."  You don't need to follow all advice.

We need to focus on "being the good enough us"
                                                                                       
"Make peace with your illness and listen to your body."

[ohiolady]

Make peace with your illness and listen to your body.   That really sums up my philosophy very succinctly.  What else can we do? 

Thanks again for the posting.

Anna

[bloodless]

"Our illness makes us foreign to others."

That's really true. I had never thought of it like that, but we do become another species don't we?