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Intussusception

Started by Katybarstool, November 22, 2009, 01:36:46 PM

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Katybarstool

November 22, 2009, 01:36:46 PM
Hi

As some of you know, I have had some probems with my bowel for the last year or so. The botox in Ocober didn't do anything, and at my appointment this week, I was told that part of my bowel is 'telescoping' and that it's likely I will need surgery, with mesh, to pin the prolapse to my pelvis. We are holding off on surgery for now, and will review in a few months, unless I have more problems before then.

Anyone else had this? The bowel doctor thinks it's related to the SJS. Will see what the rheumy thinks in a couple of weeks.

Kathyx

Patze

#1
November 22, 2009, 02:11:12 PM
I've not, but I wish you the best my friend, and please update us, okay?

Take care -

Patze
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lynnmarie219

#2
November 22, 2009, 04:02:46 PM
I haven't had to deal with this either, but I want to wish you luck at getting this corrected as quickly as is needed. What caused this for you? Have they given you any other ideas in addition to possibly related to SS?

Please keep us posted and I hope you get more answers very soon....hang in there!

kimbo

#3
November 22, 2009, 05:10:58 PM
I have not Kathy.

I hope all goes well for you.

So sorry you are having to go thru this and the doctor runarounds as I have read in your posts.

We all get our little special gifts with our sjogrens journeys.

Prayers for you and blessings , kimbo
Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

Katybarstool

#4
November 23, 2009, 01:47:24 PM
Thank you for your comments. Today I had an appointment with the continence nurse to discuss my problems passing urine. The upshot is that I am retaining a large amount of urine, which is probably being trapped by my 'significant' cystocele.  I have some specific advice about using a bladder stimulater on my lower abdoment, and instructions for trying to void more urine. The review is in two weeks, when we will discuss a referal to gyny surgeon to sort our the cystocele. This is independent to the internal bowel prolapse.

Sometimes I wonder where it will end. Although I know these are not life threatening problems, they are certainly threating my sanity :(

Kathyx

 

jaygee

#5
November 23, 2009, 02:24:59 PM
Sorry you're having such a rotten time, Kathy.  Hope things improve soon.  (((((((((kathy)))))   xx
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