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Started by mom2boys, August 25, 2009, 05:55:25 PM

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mom2boys

Hello Everyone~
Thank you to everyone for sharing on this site.  I have been helped so much from your stories.  I was diagnosed with primary Sjogren's last year and have had mostly joint pain, fatigue and some dry eye.  Not too bad, but sometimes the fatigue really hits you.  I'm 41 and my rheumy thinks I may have had my first flare in my early 30s.

Bernice

Hey Mom2boys,

Welcome! Welcome! Welcome to Sjogrens World!

Yeah! The fatigue is horrible for most of us! Though some seem to escape this aspect of the journey on the road with SJS!

For me fatigue, brain fog, painful joints and muscles are the worst as of late.

This latest flare started with a month long visit from my then two year old grand daughter, I thought that child was going to kill me for sure.

Everyday of that last two weeks especially, I thought for sure with every step I took I was just one more step from seeing my maker! ???  ::) ;D

That was June and I am just now fully recovering, let's say a week ago I felt like "O,K. it's finally over!"

Look forward to getting to know you!
Bernice


kimbo

mom2boys,

So glad we have given you some encouragements.

I am sure in your tour thru our forum here, you have discovered, that though we have SJS in common, there is varying differences .

We all have flares from time to time involving different characteristics of issues with SJS. At different levels of intensity.

Welcome and please make yourself at home.

blessings kimbo

Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

Linda196

Hi Mom, welcome from me, too.

Enjoy your tour of SjS world, but bring a cup of tea, coffee, a big drink of water or your bevvie of choice with you, because you may find yourself here for lots longer than you planned! It can be very compelling, once you get reading.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

Scottietottie

Hi Mom2boys  :)

Welcome to Sjogren's worlf from me too. It's a great place to share experience and to ask questions - and not just about SjS!! I'm sure you'll find it friendly.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

harrigan

Another welcome from another mum of boys!!  How many boys are you mom to?  XX Ailsa
Female, 54
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: abatacept, Methotrexate injections , Folic Acid, Amitriptyline, Ozepramole, Tramacet, Glandosane & Viscotears.

jaygee

hello  ;D

I was a mere "lurker" on the forum a couple of months ago, now I have to visit daily to see how everyone is  :D     xx

Patze

Hi mom2boys,

Let me also welcome you to the SJS World!  Please do continue to peruse the board as you'll always find a bit of information that you didn't know before.  And Linda has a very good point, bring an extra large drink of your choice as once you log in, you'll be hanging out longer than you think - I know I sure do and enjoy it all (this is one of the friendliest boards that you'll find)!

Again, welcome and I hope to chat with you soon -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

Bernice

Me too Jay!!! ;D

In fact I stay logged in while at work and check in every so often when things at seem to slow down or I just slow down!

Bernice

Patze

Hey Bernice,

You can keep it opened at the office?  Wow, that's great!!!!  Oh well, I can't log in at the office, but I can open it up at home! ;) ;D


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

lynnmarie219

Hi Mom!

Welcome to Sjogrens World from me too!

So glad to hear that you are already finding this site helpful and I hope you continue to come here for information, support and friendship!



Bernice

Patz,
I don't keep it open all day, I switch between tabs from time to time. I'm in office by myself, so as long as I get my job and a little more done I don't feel too bad. ;) :D

Bernice

mom2boys

Thank you everyone for such a warm welcome!  I've been in a bit of a flare lately and feeling a little down about this "disease".  I'm used to doing a lot and the fatigue has been tough for me.  Plus it just makes me feel OLD.

Patze

Hang in there mom2boys, I'll keep the ol' paws crossed for ya.


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen